Objectives: Despite an increased policy focused on home- and community-based services (HCBS), little is known about their quality of life (QoL)-a key measure of person-centered care. This paper addresses this gap by measuring consumers' self-reported QoL and identifying factors associated with disparities in QoL.
Methods: We analyzed the 2015-2016 National Core Indicators-Aging and Disability survey for 3426 respondents in Minnesota, using factor analyses to identify latent QoL domains. Multivariable regression models identified predictors of QoL domains.
Results: Factor analyses identified three valid and reliable latent QoL domains: security, self-determination, and care experiences. Younger consumers with disabilities (versus consumers ≥65 years of age), minoritized racial/ethnic groups, consumers with hearing loss, without a spouse/domestic partner, and not living in consumer's own/family home reported significantly lower QoL in various domains ( < .001).
Discussion: Disparities in HCBS consumer-reported QoL exist, necessitating equitable reforms to improve HCBS quality for its increasingly diversified consumer base.
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http://dx.doi.org/10.1177/08982643241267378 | DOI Listing |
Children (Basel)
December 2024
Gastroenterology Unit, Pediatrics Department, Academic Medical Centre of Lisbon, Santa Maria University Hospital-CHULN, Av. Prof. Egas Moniz MB, 1649-028 Lisbon, Portugal.
Inflammatory bowel disease (IBD) is an immune-mediated chronic disease with a significant impact on quality of life. In pediatric patients, diagnosing and managing IBD is particularly challenging, and IBD often presents as a more severe and progressive disease. Patient-reported outcomes (PROs) are measures of treatment and disease management outcomes reported by patients and/or caregivers.
View Article and Find Full Text PDFBehav Sci (Basel)
December 2024
Faculty of Education, Chiba University, Chiba 263-8522, Japan.
This study aimed to examine the levels, demographic differences, and associations between body image (BI) and quality of life (QOL) among Japanese adolescents with congenital physical disabilities. A self-report questionnaire was administered to 107 Japanese adolescents with congenital physical disabilities, which included demographic variables, the Multidimensional Body-Self Relations Questionnaire, and the Japanese version of the World Health Organization Quality of Life Brief Version. Data were analyzed using Cronbach's α coefficient, descriptive statistics, -tests, one-way ANOVA, and Pearson's correlation coefficient.
View Article and Find Full Text PDFBrain Sci
December 2024
Department of Neurosurgery, Icahn School of Medicine at Mount Sinai, New York, NY 10029, USA.
Background And Aims: Measuring stroke recovery poses a significant challenge, given the complexity of the recovery process. We aimed to identify a standardized and data-driven set of metrics of stroke rehabilitation in the literature that ensures the inclusion of all recovery domains and subdomains in the literature.
Methods: A systematic review was conducted by four reviewers using the PRISMA guidelines on PubMed, MEDLINE, and Embase for stroke recovery articles between 2004 and 2024.
Front Public Health
January 2025
Occupational Therapy Department, College of Allied Health Sciences, Kuwait University, Kuwait City, Kuwait.
Introduction: Attending university marks a pivotal yet stressful phase in students' lives, characterized by significant adjustments to a new environment that can impact mental, emotional, and physical well-being. The journey through the acceptance and admissions process into university introduces substantial challenges, academic performance and changes to daily life. Such challenges and corresponding conditions can be intensified for students entering university with prior traumatic experiences.
View Article and Find Full Text PDFArch Esp Urol
December 2024
Department of Emergency Surgery, Qingdao Eighth People's Hospital, 266000 Qingdao, Shandong, China.
Background: Targeted therapies, including axitinib, a vascular endothelial growth factor receptor inhibitor, and sintilimab, a programmed cell death protein-1 inhibitor, have shown promise in the treatment of advanced renal cell carcinoma (RCC). Although their individual efficacies have been demonstrated, the potential synergistic effects of combining these two agents are still being explored.
Methods: This study retrospectively analysed patients with advanced RCC admitted to our hospital from January 2022 to December 2023.
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