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Evolving Perspectives on Immune Repertoire Profiling: Challenges and Opportunities in the Era of Long-Read Sequencing.
Clin Chem
December 2024
Ramaciotti Centre for Genomics, School of Biotechnology and Biomolecular Sciences, Faculty of Science, UNSW Sydney, Kensington, Australia.
Parental Perspectives on Pediatric Surgical Recovery: Narrative Analysis of Free-Text Comments From a Postoperative Survey.
JMIR Perioper Med
December 2024
Research Institute, BC Children's Hospital, Vancouver, BC, Canada.
Background: Qualitative experience data can inform health care providers how to best support families during pediatric postoperative recovery. Patient experience data can also provide actionable information to guide health care quality improvement; positive feedback can confirm the efficacy of current practices and systems, while negative comments can identify areas for improvement.
Objective: This study aimed to understand families' perspectives regarding their children's surgical recovery using qualitative patient experience data (free-text comments) from a prospective cohort study conducted within a larger study developing a postoperative-outcome risk stratification model.
Patients' perspectives regarding health professionals contacting their relatives about genetic risk directly (with patient consent).
Eur J Hum Genet
December 2024
Centre for Law and Genetics, University of Tasmania, Hobart, TAS, Australia.
Genetic testing of blood relatives of individuals at high risk of dominant conditions has significant preventive health benefits. However, cascade testing uptake is <50%. Research shows increased testing uptake when health professionals (HPs) contact at-risk relatives directly, with patient consent.
View Article and Find Full Text PDFOutcome of surgery for congenital heart disease - A perspective from Malaysia.
Ann Pediatr Cardiol
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Department of Cardiothoracic Surgery, National Heart Institute, Kuala Lumpur, Malaysia.
How bereaved families conceptualise good care and communication in intensive care in South Australia.
BMC Health Serv Res
December 2024
Intensive Care Unit, Royal Adelaide Hospital, Adelaide, Australia.
Since 2018, DonateLife South Australia and the Royal Adelaide Hospital (RAH) have collaborated to deliver routine family follow-up after bereavement in the intensive care unit (ICU). This follow-up includes a telephone interview that invites bereaved family members to comment on the quality of care and communication experienced in the ICU. To identify bereaved families' experiences, including how they conceptualise good care and communication in intensive care, an analysis was conducted on all qualitative data collected during 118 interviews completed between 1 February 2018 and 30 May 2019.
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