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Patient and public involvement and engagement: Do we need an 'ethical anchor'?
Res Involv Engagem
October 2024
Faculty of Medical Sciences, Population Health Sciences Institute, Newcastle University, Newcastle Upon Tyne, UK.
Background: Working alongside patients and the public to shape and engage with research, Patient and Public Involvement and Engagement (PPIE), facilitates more impactful research outcomes. The UK Standards for Public Involvement provides a framework for conducting PPIE; however, they do not refer directly to ethical conduct. Research ethics involve the moral principles that govern researchers' actions, and securing ethical approval from a research ethics committee is necessary before starting a study.
View Article and Find Full Text PDFTwo paths for health AI governance: paternalism or democracy.
Future Healthc J
September 2024
Co-founder, Foxglove Legal, Senior Fellow, Open Markets Institute, Spain.
This article assesses the cyclical failures of NHS data modernisation programmes, and considers that they fail because they proceed from a faulty - excessively paternalistic - governance model. Bias in algorithmic delivery of healthcare, a demonstrated problem with many existing health applications, is another serious risk. To regain trust and move towards better use of data in the NHS, we should democratise the development of these systems, and de-risk operational systems from issues such as automation bias.
View Article and Find Full Text PDFPerspectives of healthcare providers on osteoporosis, falls and fracture risk: a systematic review and thematic synthesis of qualitative studies.
Arch Osteoporos
September 2024
Faculty of Health and Medicine, School of Public Health, The University of Sydney, Sydney, Australia.
Objective: Osteoporosis and falls are major risk factors for osteoporotic fractures, with significant detriment to patients' quality of life. We aimed to describe healthcare provider (HCP) perspectives and experiences in the diagnosis, management and prevention of osteoporosis, falls and fractures obtained through primary qualitative research.
Methods: Thematic synthesis was performed on articles identified through a search of electronic databases (MEDLINE, Embase, PsychINFO and CINAHL), which were searched from inception to May 2023.
Solidarity in disaster scholarship.
Disasters
January 2025
International Institute of Social Studies, Erasmus University Rotterdam, The Netherlands.
Disaster scholarship purportedly promotes disaster risk reduction and resists disaster risk creation, thereby deeply engaging with transboundary existential risks, justice, and political power. It is thus a commitment to humanity, and for it to become truly equitable and just, solidarity must lie at its heart. In this paper we connect solidarity with knowledge production and assess the implications of disaster scholarship and the relationships on which it is built.
View Article and Find Full Text PDFThe foundations of informed consent and bodily self-sovereignty: a positive suggestion.
Monash Bioeth Rev
June 2024
Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Suite 310D, Houston, TX, 77030, USA.
In medical care, the obtaining of informed consent is taken to be required prior to treatment in order to ensure that patients sufficiently understand the potential risks and benefits of a given medical procedure. In this paper, I begin by looking at the history of informed consent and consider how the norms and laws in medicine have evolved away from benevolent paternalism and toward a blanket obligation to obtain informed consent. In so doing, I consider what values might be taken to underpin such a requirement.
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