AI Article Synopsis
- Caregivers of individuals with Alzheimer’s and related dementias provide over 16 billion hours of unpaid care each year, often experiencing significant stress and challenges.
- The study aimed to investigate discussions on Reddit related to Alzheimer’s, focusing on the types of support sought by users, including emotional and informational assistance.
- The findings reveal that Reddit serves as a crucial platform for caregivers to share complex emotions and seek support without stigma, highlighting the need for additional resources to aid these caregivers.
Article Abstract
Background: In the United States, caregivers of people living with Alzheimer disease and Alzheimer disease-related dementias (AD/ADRD) provide >16 billion hours of unpaid care annually. These caregivers experience high levels of stress and burden related to the challenges associated with providing care. Social media is an emerging space for individuals to seek various forms of support.
Objective: We aimed to explore the primary topics of conversation on the social media site Reddit related to AD/ADRD. We then aimed to explore these topics in depth, specifically examining elements of social support and behavioral symptomology discussed by users.
Methods: We first generated an unsupervised topic model from 6563 posts made to 2 dementia-specific subreddit forums (r/Alzheimers and r/dementia). Then, we conducted a manual qualitative content analysis of a random subset of these data to further explore salient themes in the corpus.
Results: The topic model with the highest overall coherence score (0.38) included 10 topics, including caregiver burden, anxiety, support-seeking, and AD/ADRD behavioral symptomology. Qualitative analyses provided added context, wherein users sought emotional and informational support for many aspects of the care experience, including assistance in making key care-related decisions. Users expressed challenging and complex emotions on Reddit, which may be taboo to express in person.
Conclusions: Reddit users seek many different forms of support, including emotional and specific informational support, from others on the internet. Users expressed a variety of concerns, challenges, and behavioral symptoms to manage as part of the care experience. The unique (ie, anonymous and moderated) nature of the forum allowed for a safe space to express emotions free from documented caregiver stigma. Additional support structures are needed to assist caregivers of people living with AD/ADRD.
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|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11222768 | PMC |
| http://dx.doi.org/10.2196/59294 | DOI Listing |
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