Perspectives from neuro-oncology providers on patient access to electronic records: a survey study.

CNS Oncol

Department of Neuro-Oncology, Unit 431, The University of Texas MD Anderson Cancer, 1400 Holcombe Blvd, Room FC7.3000, Houston, TX 77030, USA.

Published: June 2024

AI Article Synopsis

  • - A survey was conducted among 65 neuro-oncology providers across the USA to understand their views on patients accessing electronic records online.
  • - 58% of providers reported frequent patient inquiries about notes and findings outside of office visits, while a majority (54%) believed not all lab results should be released automatically.
  • - 97% of providers expressed concerns that patients might experience significant distress from viewing test results before their appointments, supporting their cautious stance on immediate result accessibility.

Article Abstract

To evaluate the neuro-oncology providers' experience with patient online access to electronic records. Cross-sectional survey for physicians and advanced care providers within the field of neuro-oncology in the USA. 65 providers completed the survey, from all major regions of the USA. 58% reported that at least once per month, patients contacted them outside of an office visit about provider notes or a laboratory or imaging finding accessed online. 54% of providers did not think that all laboratory results should be released automatically, and only 25% of providers thought that all radiology reads should be released immediately. 97% thought that some patients suffered substantial distress viewing test results prior to appointments. Qualitative responses aligned with the quantitative results. Most neuro-oncology providers are concerned about the immediate release of laboratory and imaging findings to patients without guidance.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11152585PMC
http://dx.doi.org/10.1080/20450907.2024.2352414DOI Listing

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