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| http://dx.doi.org/10.1080/15265161.2024.2337420 | DOI Listing |
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Using visual storytelling to share aggregate findings with families participating in clinical genomics research.
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UCSF Bioethics, University of California, San Francisco, CA.
Purpose: Sharing aggregate results with research participants is a widely agreed-upon ethical obligation; yet, there is little research on communicating study results to diverse populations enrolled in genomics research. This article describes the cocreation of a visual narrative to explain research findings to families enrolled in a clinical genomics research study.
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