AI Article Synopsis
- The study focuses on understanding how people with cervical dystonia experience activity and participation in their daily lives, highlighting their challenges and coping strategies.
- The analysis revealed two main themes: "An active life" and "A challenging life," with six sub-themes related to coping techniques, treatment adherence, and the emotional and physical toll of the condition.
- The findings emphasize the need for rehabilitation approaches that address both the physical and psychological aspects of living with cervical dystonia, suggesting future research should compare traditional physiotherapy with more holistic methods that consider patients' everyday experiences.
Article Abstract
Background: Improvement of activity and participation for the disabled and chronically ill is an important aim of rehabilitation. Cervical dystonia is a neurological movement disorder characterized by involuntary contractions of the neck muscles. Until now, research has identified factors contributing to disability rather than factors which may make it easier to be active and participate in the community.
Objective: Explore and describe perceived experiences of activity and participation in daily life as experienced by persons with cervical dystonia.
Methods: Sixteen informants participated in this semi-structured interview study. Inductive qualitative content analysis was performed to understand and interpret experiences shared by the informants.
Results: Results from the analysis generated two themes "An active life" and "A challenging life" and six sub-themes: Using helpful coping strategies, Accepting a new life situation, Adhering to BT treatment, Facing the negative impact of stress, Experiencing a negative self-image and Suffering from pain and fatigue.
Conclusions: Our results support the importance of actions using a rehabilitation approach that consider both motor and non-motor symptoms. Future studies should compare the effects of physiotherapy taking into account wishes and challenges in patients' everyday life versus traditional physiotherapy addressing mostly the motor disorder.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1080/09593985.2024.2359495 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!