AI Article Synopsis
- The study explores the quality of life (QOL) experiences of children and adolescents with advanced cancer, aiming to understand what aspects impact their well-being.
- Through a meta-synthesis approach, researchers identified key themes reflecting the perspectives of these young patients, such as feeling supported, re-establishing normality, experiencing suffering, and maintaining autonomy.
- This research highlights the unique voices of children and adolescents in understanding their QOL, marking an important step toward better measurement and understanding of their experiences.
Article Abstract
Purpose: The quality of life (QOL) experiences of children and adolescents living with advanced cancer have been under-explored. Enhancing QOL for this population is a dominant goal of their healthcare yet, there has been little research identifying aspects that impact their QOL. The purpose of this meta-synthesis was to identify themes of QOL informed from the voices of children and adolescents living with advanced cancer.
Methods: This meta-synthesis utilized meta-ethnography to synthesize data from individual studies in order to develop new conceptual understanding of what is important to children and adolescents about their lives when living with advanced cancer.
Results: Our analysis identified themes of QOL relevant to children and adolescents with advanced cancer: (1) feeling supported and wanting to support others; (2) re-establishing normal; (3) suffering and emotional distress; (4) new perspectives; (5) maintaining autonomy; and (6) awareness of time. These themes differed from more traditional dimensions of QOL often applied to children and adolescents with cancer.
Conclusion: This research is novel as its developed themes originated from the direct voices and expressed perspectives of children and adolescents living with advanced cancer. This is a significant initial step toward both understanding QOL in this specific context and the measurement of QOL for this population.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1007/s11136-024-03688-y | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Comparative analysis of estimated age by pulp-to-tooth area ratio using CBCT in three different teeth on a subset of Hyderabad population: A preliminary study.
J Forensic Odontostomatol
December 2024
Department of Oral Medicine and Radiology, Army College of Dental Sciences.
Objectives: The study aims to evaluate the pulp-to-tooth area ratio in permanent maxillary central incisors, lateral incisors, and canines for age estimation using three-dimensional cone beam computed tomography images.
Methods: Hundred cone-beam computed tomography (CBCT) images of patients aged between 12-70 years were retrospectively studied using NNT Viewer software version 13. Pulpal and teeth area were evaluated with the "area tool" in the acquired images in all three planes, and the pulp-to-tooth area ratio (PTR) was calculated with the measurements obtained.
Trends in childhood cancer: Incidence and survival analysis over 45 years of SEER data.
PLoS One
January 2025
Departments of Global Pediatric Medicine and Oncology, St. Jude Children's Research Hospital, Memphis, TN, United States of America.
Background: The SEER Registry contains U.S. cancer statistics.
View Article and Find Full Text PDFThe survey of vaccination hesitancy among the residents in Jinan.
PLoS One
January 2025
The Department of Disease Control and Prevention, Shandong Armed Police Forces General Hospital, Jinan, China.
Introduction: Vaccination is an important way to prevent disease, but vaccine hesitancy will impact vaccine coverage and indirectly affect health. This study aims to survey the status of vaccine hesitancy among adults in Jinan.
Methods: A cross-sectional study was conducted using the vaccine hesitancy scale among the parents of children and teenagers at hospitals in Jinan, China.
Association between early life second-hand smoke exposure on child sleep and psychoactive substance use on adult sleep patterns in an urban informal settlement in Uganda.
PLoS One
January 2025
Department of Disease Control and Environmental Health, School of Public Health, Makerere University, Kampala, Uganda.
Background: Psychoactive substance use in adults and second-hand smoke (SHS) exposure among children are leading contributors to sleeping problems. Despite this, there is limited data on how these exposures influence sleep patterns in informal settings. Our study assessed the associations between substance use, SHS exposure and sleep disturbances among adults and children in an urban informal settlement in Uganda.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!