AI Article Synopsis
- The study investigates how the COVID-19 pandemic has affected autistic children, their families, and the service providers who support them, revealing a lack of understanding in this area.
- Through interviews with 13 parents and 18 service providers, the research highlights various challenges brought on by pandemic restrictions, which negatively impacted the daily lives of autistic individuals and their support systems.
- The findings emphasize the importance of enhancing autism-specific support and preparedness in services to better handle similar emergencies in the future and inform post-pandemic service delivery.
Article Abstract
Purpose: The impacts of the COVID-19 pandemic on autistic children/youth and their families and on service providers are not yet well-understood. This study explored the lived experiences of families with an autistic child and service providers who support them regarding the impacts of the pandemic on service delivery and well-being.
Methods: In this qualitative study, families and service providers (e.g., early intervention staff, service providers, school personnel) supporting autistic children/youth were interviewed. Participants were recruited from a diagnostic site and two service organizations that support autistic children/youth.
Results: Thirteen parents and 18 service providers participated in either an individual or group interview. Findings indicate challenges associated with pandemic restrictions and resulting service shifts. These challenges generally imposed negative experiences on the daily lives of autistic children/youth and their families, as well as on service providers. While many were adversely affected by service delivery changes, families and service agencies/providers pivoted and managed challenges. Shifts have had varied impacts, with implications to consider in pandemic planning and post-pandemic recovery.
Conclusion: Results highlight the need for autism-focused supports, as well as technology and pandemic preparedness capacity building within health, therapeutic and educational sectors in order to better manage shifts in daily routines during emergencies such as a pandemic. Findings also offer instructive consideration in service delivery post-pandemic.
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| http://dx.doi.org/10.1007/s10803-024-06402-6 | DOI Listing |
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