Context: Internationally, studies suggest that inadequate comprehension of the concept of palliative care and misconceptions about it hinder the effective use of palliative care, especially in developing nations.
Objective: To assess the awareness of the adult population in Jordan regarding palliative care.
Methods: The study used a cross-sectional design and an online self-administered questionnaire survey. The recruitment method was convenience snowball sampling of three thousand nine hundred forty-two Jordanian adults covering 12 governorates. Participants were recruited through social media platforms like Facebook and WhatsApp. The process of gathering data commenced in October -December 2023. Descriptive statistics were computed.
Results: A study of 3942 respondents in Jordan found that 45% have some knowledge of palliative care, with 31% being pretty knowledgeable. Most respondents (89%) strongly agree that patients with incurable illnesses should receive palliative care, with cancer patients showing the highest level of agreement (96%). The most agreed-upon aspect of palliative care is controlling pain and symptoms at home, while the least agreed-upon aspect is providing information on benefits and financial matters. The study also highlighted the link between palliative care and mortality, suggesting the need for increased awareness and education.
Conclusion: The demand for palliative care in Jordan is increasing, requiring increased access, a holistic approach, open discussions, and easily accessible information. Challenges include integrating palliative care into non-malignant progressive diseases, ensuring comprehensive end-of-life care, promoting societal receptiveness towards mortality, enhancing information accessibility, and health promotion efforts. The study's results indicate the importance of implementing educational strategies and engaging families and communities in policymaking to change public knowledge and attitudes toward palliative care.
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http://dx.doi.org/10.1016/j.jpainsymman.2024.04.016 | DOI Listing |
West J Nurs Res
January 2025
UT Health San Antonio, San Antonio, TX, USA.
Background: Provision of palliative care in acute care settings is significantly lacking despite evidence that early integration leads to better patient/family-related outcomes and improved healthcare cost and efficiency.
Objective: This study investigated influencing factors that affect the nature and frequency of palliative care practices of acute care nurses.
Methods: A descriptive, cross-sectional design was used to examine the effects of personal and environmental factors on nurses' palliative care practices in the acute care setting.
Swiss Med Wkly
January 2025
Department of Internal Medicine, Clinic for Medical Oncology and Hematology, Municipal Hospital Zurich Triemli, Zurich, Switzerland.
Introduction: Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a very rare disease, with unique diagnostic challenges and often dismal outcome. There are no widely accepted treatment guidelines available. Lymphoma-like regimens with or without autologous or allogenic transplantation were the cornerstone of most therapeutic concepts.
View Article and Find Full Text PDFJ Palliat Med
January 2025
Palliative Medicine Division, University of Kansas Medical Center, Kansas City, Kansas, USA.
Despite the increasing focus on goal-concordant care in the emergency department (ED), there is limited data about patients who receive a new hospice referral and the care paths of patients on hospice who present there. Describe the characteristics and clinical course of ED patients who receive a new hospice referral and those already receiving hospice care. Retrospective chart review of all adult patients presenting to the ED from January 2021 to July 2023.
View Article and Find Full Text PDFActa Oncol
January 2025
Department of Occupational Therapy and Physiotherapy, Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark.
Purpose: This study aims to identify and summarize evidence on the effectiveness of exercise-based interventions on muscle mass, muscle strength, functional performance, aerobic capacity, health-related quality of life (HRQoL), feasibility of the interventions, in patients with malignant lymphoma undergoing chemotherapy.
Methods: A systematic search was conducted in six electronic databases and trials registers on November 15, 2023. Peer-reviewed randomized controlled trials (RCTs) comparing exercise intervention with controls/usual care in adults (≥18 years) diagnosed with Hodgkin's lymphoma and non-Hodgkin's lymphoma undergoing chemotherapy were considered for inclusion.
Am J Hosp Palliat Care
January 2025
Nishigamo Home-Visit Nursing Station, Kyoto, Japan.
This study aimed to develop the "Home Hospice Nursing Care Scale" to assess the care provided by visiting nurses to patients with end-stage cancer and evaluate its reliability and validity. A draft of the scale was created based on a descriptive survey conducted among oncology nurse specialists and certified oncology nurses working as home-visit nurses. A questionnaire survey was administered to 1,770 home-visit nurses working at 296 functionally strengthening home-visit nursing establishments.
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