Purpose: To explore the perspectives of primary caregivers of children with cerebral palsy (CP) who had spinal surgery for scoliosis.
Materials And Methods: A qualitative study was conducted using semi-structured interviews and guided by qualitative description methodology. Participants were caregivers of children with CP aged 5-18, who had undergone spinal surgery for scoliosis in Australia. The research team included a parent with lived experience.
Results: Fourteen participants (8 biological mothers), aged 40-49 years, completed online semi-structured interviews. Four themes were identified emerged. underpinned all experiences which were founded on familiarity with their child, medical procedures, and hospitalisation. Three subthemes were , and . Theme 2 involved the significance of to proceed with surgery. Theme 3 underscored a need to for the surgical journey and, in Theme 4, participants spoke of needing to .
Conclusion: The findings highlight the importance of understanding caregiver experiences and can help inform health professionals and other families in the decision-making process, preparing for and navigating spinal surgery.
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| http://dx.doi.org/10.1080/09638288.2024.2342501 | DOI Listing |
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