AI Article Synopsis
- Parents of children with neuromuscular diseases face significant physical and psychological challenges that impact their well-being, which this study aims to analyze in terms of predictors of overload.
- A study involving 110 parents in Spain utilized various assessment tools to evaluate sociodemographic factors, quality of life, psychological adjustment, and levels of caregiver overload.
- Key findings identified three levels of caregiver overload and highlighted that factors like unemployment, child dependency severity, and life satisfaction are critical predictors, while higher self-esteem may help protect against overload.
Article Abstract
Introduction: Parents of children with neuromuscular diseases experience multiple difficulties in their daily lives that affect their physical and psychological health. The risk factors for these health issues have not been sufficiently investigated. Therefore, the aim of this study was to analyze the potential predictors of overload in these parents, including QoL, somatic symptomatology, life satisfaction, psychological adjustment and certain sociodemographic variables.
Methods: A cross-sectional research study was conducted among parents who are caregivers for children with NMD in Spain. A convenience sample of 110 parents who were contacted by associations and hospitals was used. Variables were evaluated using the sociodemographic questionnaire, CarerQol-7D, PHQ-15, Barthel Index, Psychological Adaptation Scale, Zarit Overload Scale and Satisfaction with Life Scale.
Results: One of the most relevant findings of the present study is the identification of 3 overload groups (mild to moderate, moderate to severe, and severe overload) based on life satisfaction and somatic symptom scores within the predictive model of the discriminate analysis. Wilk's lambda of the discriminant function was 0.568, χ (2, = 55) = 8.815, < 0.001.
Discussion: This study presents a model that reveals the influence of unemployment, having a child with a severe level of dependency, the presence of somatic symptomatology and life satisfaction on caregiver overload. Likewise, the caregiver's self-esteem could be a protective factor against overload.
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|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10996859 | PMC |
| http://dx.doi.org/10.3389/fneur.2024.1349501 | DOI Listing |
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