AI Article Synopsis
- The manuscript emphasizes the significance of increasing the adoption of Core Outcome Sets (COS) through collaboration and understanding the needs of various stakeholders.
- A simulation format was used to engage eight Collaborator groups, highlighting the importance of COS and identifying barriers like lack of recommendations, inadequate patient involvement, and low awareness.
- The findings advocate for COS development that includes patients and collaborators at all levels, calling for future research to investigate effective implementation and the role of validated instruments in improving COS uptake.
Article Abstract
Objective: This manuscript highlights the importance of enhancing the uptake of Core Outcome Sets (COS) by building partnerships with Collaborators and addressing their needs in COS development.
Methods And Setting: This session was structured as a simulation, resembling a format akin to a classic television game show. The moderator posed a series of questions to eight different Collaborator groups who briefly described the importance of COS within their areas of interest. Previous studies examining the uptake of individual core outcomes revealed disparities in uptake rates. The Identified barriers to the uptake of COS include the lack of recommendations for validated instruments for each domain, insufficient involvement of patients and key Collaborator groups in COS development, and a lack of awareness regarding the existence of COS.
Conclusions: This analysis underscores the need for COS development approaches that prioritize the inclusion of patients and diverse Collaborator groups at every stage. While current studies on COS uptake are limited, future research should explore the broader implementation of COS across diverse disease categories and delve into the factors that hinder or facilitate their uptake such as, the importance of COS developers extending their work to recommending domains with well validated instruments. Embracing patient leadership and multifaceted engagement is essential for advancing the relevance and impact of COS in clinical research.
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| http://dx.doi.org/10.1016/j.semarthrit.2024.152438 | DOI Listing |
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