AI Article Synopsis
- The study aimed to identify healthcare and research priorities for women with Polycystic Ovary Syndrome (PCOS) in the UK, highlighting the need for input from affected individuals.
- A modified Delphi method was used, engaging lay representatives and healthcare professionals through questionnaires and a consensus meeting, with 624 participants predominantly diagnosed with PCOS.
- Key findings revealed a strong demand for improved education for healthcare providers and the establishment of specialist PCOS services, along with a focus on finding better treatments for irregular periods and enhancing early diagnostic tests.
Article Abstract
Objective: Polycystic ovary syndrome (PCOS) is a chronic lifelong condition affecting up to 20% of women worldwide. There is limited input from affected women to guide the provision of healthcare services and future research needs. Our objective was to scope the healthcare and research priorities of women with PCOS in the United Kingdom.
Design: A three-staged modified Delphi method, consisting of two questionnaires and a consensus meeting involving lay representatives and healthcare professionals.
Patients And Measurements: Lay patient representatives of women with PCOS. Participants were asked to identify and rank healthcare and research priorities for their importance.
Results: Six hundred and twenty-four lay participants took part in our Delphi method. Over 98% were diagnosed with PCOS (614/624, 98.4%). More than half experienced difficulties to receive a PCOS diagnosis (375/624, 60%), and the majority found it difficult to access specialised PCOS health services in the NHS (594/624, 95%). The top two healthcare priorities included better education for health professionals on the diagnosis and management of PCOS (238/273, 87.1%) and the need to set up specialist PCOS services (234/273, 85.7%). The top two research priorities focused on identifying better treatments for irregular periods (233/273, 85.3%) followed by better tests for early PCOS diagnosis (230/273, 84.2%).
Conclusions: We identified 13 healthcare and 14 research priorities that reflect the current health needs of women with PCOS in the United Kingdom. Adopting these priorities in future healthcare and research planning will help to optimise the health of women with PCOS and increase patient satisfaction.
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| http://dx.doi.org/10.1111/cen.15038 | DOI Listing |
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