AI Article Synopsis
- The study aimed to assess the burden experienced by Primary Family Caregivers (PFC) of children who suffered severe traumatic brain injuries, seven years after the incident.
- Data was collected from 36 caregivers using various scales to measure subjective burden, health status, family functioning, and the child's needs, revealing that a significant percentage of caregivers reported varying degrees of burden.
- Results indicated higher caregiver burden was linked to worse outcomes in child behavior and participation, highlighting the importance of addressing caregiver needs and providing ongoing psychological support.
Article Abstract
Objective: To investigate reported burden by the Primary Family Caregiver (PFC) 7-years after severe pediatric traumatic brain injury in the TGE (Traumatisme Grave de l'Enfant) longitudinal study.
Methods: Subjective burden was estimated with the Zarit Burden Inventory (ZBI) in 36 PFC (parents), who rated their own health status (Medical Outcome Study Short Form-12), family functioning and their child's level of care and needs (Pediatric/Adult Care And Needs Scale [PCANS/CANS]). Data collection included: child and PFC sociodemographic characteristics, injury-related factors, 'objective' (e.g. overall level of disability: Glasgow Outcome Scale - Extended, GOS-E/GOS-E-Peds) and 'subjective' outcomes (e.g. participation, behavior, executive functions, quality of life and fatigue).
Results: 25% of PFC reported mild-moderate burden, and 19% moderate-severe burden. Higher burden correlated with worse outcomes in all 'subjective' PFC-rated outcomes, and with self-reported participation. The ZBI correlated strongly with CANS/PCANS and GOS-E/GOS-E-Peds. Overall level of disability and PFC-reported executive functioning explained 62% of the ZBI variance. For equal levels of disability, burden was higher when PFC reported a 'negative' picture of their child.
Conclusion: Significant PFC-reported burden 7-years post-injury was associated with overall disability and 'subjective' PFC-rated outcomes. Factors influencing parental burden in the long term should be identified and psychological support implemented over time.
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| http://dx.doi.org/10.1080/02699052.2024.2318588 | DOI Listing |
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