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"Being a Good Parent" During Times of Illness as Defined by Chinese Children With Cancer, Their Parents, and Providers. | LitMetric

"Being a Good Parent" During Times of Illness as Defined by Chinese Children With Cancer, Their Parents, and Providers.

Cancer Nurs

Author Affiliations: School of Nursing, Fudan University (Ms Zhang and Dr Cheng), Shanghai; Guangzhou Women and Children's Medical Center (Ms Huang), Guangdong; Anhui Provincial Children's Hospital (Ms Duan); and Hematology & Oncology Department, Children's Hospital of Fudan University (Ms Yu), Shanghai, China.

Published: November 2024

AI Article Synopsis

  • The study aims to understand the definition of "being a good parent" specifically for parents of children undergoing pediatric cancer treatment in China, considering the perspectives of children, parents, and healthcare providers.
  • The research involved qualitative interviews with various stakeholders, identifying key themes such as "being there for my child," "doing right by my child," and a new theme called "rebuilding myself."
  • Findings highlight that the perception of good parenting varies among stakeholders and emphasizes the need for support systems that respect parents' definitions of good parenting, cultural contexts, and collaborative decision-making in healthcare.

Article Abstract

Background: Identifying the definition of "being a good parent" facilitates the understanding of parents' personal beliefs and deeds regarding their ill child.

Objective: The aim of this study was to explore the concept of "being a good parent to my ill child" during pediatric cancer treatment from the perspective of Chinese children, parents, and providers.

Methods: A descriptive qualitative study was conducted with 6 children, 18 parents, 5 doctors, 19 nurses, and 3 social workers by semistructured interviews at 3 Chinese hospitals.

Results: Except for "letting the Lord lead," 7 themes from the original conceptual model were validated, for example, "being there for my child" (n = 51, 100.0%); "doing right by my child" (n = 38, 74.5%), "being an advocate for my child" (n = 27, 52.9%), "conveying love to my child" (n = 26, 51.0%), "making my child healthy" (n = 18, 35.3%), "being a good life example" (n = 13, 25.5%), and "not allowing suffering" (n = 13, 25.5%). A new theme, "rebuilding myself" (n = 39, 76.5%), emerged in the Chinese context. "Being a good parent to my ill child" is perceived differently among stakeholders. Healthcare professionals' facilitation to fulfill the concept included "recognizing the individualized good-parent definition," "providing best available care" and "establishing a supportive environment."

Conclusion: "Being a good parent to my ill child" is meaningfully expressed by Chinese parents and recognized by children and providers during pediatric cancer treatment.

Implications For Practice: It is important to support parents in conveying their internal good parent definition and sharing it with stakeholders. Attention should be paid to related cultural influencers, a supportive family-friendly environment, and shared decision making involving the child's voice.

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Source
http://dx.doi.org/10.1097/NCC.0000000000001329DOI Listing

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