Ethics of Managing an Adolescent Living with Disability.

Indian Pediatr

Departments of Family Medicine and Clinical Ethics, St. John's Medical College, Bengaluru, Karnataka, India. Correspondence to: Dr. Sanjiv Lewin, Professor, Department of Family Medicine and Clinical Ethics, St. John's Medical College, Bengaluru, Karnataka, India.

Published: February 2024

AI Article Synopsis

  • The parents of an adolescent girl with severe intellectual disability sought a hysterectomy to prevent menstruation and pregnancy, raising ethical concerns about consent and autonomy.
  • The family's challenging circumstances, including rural living and lack of support, heightened parental distress and the situation's complexity.
  • The text examines differing perspectives from healthcare professionals, emphasizing the need for an ethical decision-making process based on existing literature.

Article Abstract

An ethical challenge arose when the parents of an adolescent girl living with severe intellectual disability requested for a permanent surgical intervention (hysterectomy) that would cause cessation of menstruation and reduce the possibility of pregnancy following nonconsensual sex. The family background was rural with poor access to extended family/community support, financial and social welfare resources. The parental distress was real with the adolescent incompetent to give informed consent. Is a non-therapeutic hysterectomy in an adolescent living with severe intellectual disability ethical? Views of a pediatrician, adolescent specialist, nurse, and an ethicist referring to literature suggesting an approach to an ethical decision are discussed herein.

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