This 'perspective' article is an urgent call to action on behalf of mothers (and indeed fathers) of disabled children in the wake of the COVID-19 pandemic. In doing so draws attention to the 'perfect storm' experienced by United Kingdom-based parents of reduced support and increased stress, coupled with the effects of isolation. It also illuminates some of the impact of actions taken, and not taken, during and after the pandemic and the enduring effects for working parent-carers. In doing so I argue that, despite facing these extreme challenges, these parents have been a neglected group from both a policy and research perspective. The call to action therefore extends to society, employers, and to the research community.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10808806 | PMC |
| http://dx.doi.org/10.3389/fsoc.2023.1304676 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Situational analysis of human and agricultural health practice: One Health and antibiotic use in an indigenous village in rural Punjab, India.
One Health
June 2025
Dahdaleh Institute for Global Health Research, York University, Canada.
Antimicrobial resistance (AMR) represents one of the biggest threats to health globally. The rise of AMR has been largely attributed to the misuse and abuse of antimicrobials in veterinary, human, and agricultural medicine. This study aimed to assess human, livestock, and agricultural health profiles, and practices of One Health and antibiotic use through a situational analysis of an Indigenous village Gurah, in a rural area of Mohali district in Punjab state using a demographic and facility survey.
View Article and Find Full Text PDFAddressing the Shortage of Academic Nurse Educators: An Opportunity for Collaboration Between Academic and Healthcare Organization Leaders.
J Nurs Adm
January 2025
Author Affiliations: Assistant Professor (Dr Brown), Rush University College of Nursing, Chicago, Illinois; Professor (Dr Pajarillo), Adelphi University, Garden City, New York; Instructor (Baker), Stephen F. Austin State University, Nacogdoches, Texas; Assistant Professor (Dr Kabigting), Adelphi University, Garden City, New York; Adjunct Assistant Professor (Dr Bajwa), MGH Institute of Health Professions, Boston, Massachusetts; Professor (Dr Dowling-Castronovo), Monmouth University, West Long Beach, New Jersey; Director/Chair (Dr Kaufman), Great Bay Community College, Portsmouth, New Hampshire; Dean (Dr Santee), RWJBarnabas Health/Trinitas School of Nursing, Elizabeth, New Jersey; Adjunct Faculty (Dr Seibold-Simpson), State University of New York Delhi School of Nursing; and Nursing Consultant/Mentor (Dr Lee), Ames, Iowa.
Background: The numbers of nursing school admissions and, thus, future nursing graduates are directly affected by the lack of qualified ANEs.
Methods: A consortium of diverse ANEs was formed to research these questions using the nominal group technique.
Results: Two central themes emerged from the consortium: support and collaboration.
Impacts of immersive 3D videos on students' surgical learning compared to 2D videos: a randomized controlled trial.
Int J Surg
December 2024
Department of Gynecological and Breast Surgery and Oncology, Pitié-Salpêtrière, Assistance Publique des Hôpitaux de Paris (AP-HP), University Hospital, Paris, France.
Background: Unlike other medical specialties, surgery is primarily learned through apprenticeship, by observing surgeons in action during operations. However, the increasing number of medical students and work-hour restrictions limit opportunities for learning in the operating room (OR). These circumstances call for novel technologies, such as immersive video.
View Article and Find Full Text PDFChallenges of sharing individual participant data for secondary research on neglected tropical diseases: the experience of Drugs for Neglected Diseases initiative and a call for action.
BMJ Open
December 2024
Drugs for Neglected Diseases initiative, Geneva, Switzerland
Introduction: The Drugs for Neglected Diseases initiative (DNDi) is committed to maximising the scientific value of the individual participant data (IPD) it has collected during its 20 years of activity and the IPD it will collect in the future, while safeguarding research participants' privacy and their right to know how their data will be processed.
Objective: The objective of this article is to share what DNDi has learnt while working on its commitment to data sharing. It also aims to advance the debate about best practice in the research community to avoid 'IPD sharing paralysis', with a focus on multistakeholder projects involving patients and researchers based in countries with various levels of data privacy regulations and measures.
Diversity, Equity, and Inclusion in Multiple Myeloma: A Call to Action.
J Adv Pract Oncol
July 2024
Dana-Farber Cancer Institute, Boston, Massachusetts.
Background: Although advancements in multiple myeloma therapy have rapidly evolved, pervasive racial and social inequities prevent uniform benefit across diverse patient populations. This affects access to US Food and Drug Administration-approved treatments and to clinical studies. The impact of health-care inequities is not well understood and thus, the development of effective strategies is inadequate.
View Article and Find Full Text PDFWant AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!