Implementing ethics is a complex issue and should engage stakeholders. Yet, ensuring a fair, transparent, and meaningful participatory process contributes to the complexity. This qualitative study explores how to engage with stakeholders about a COVID-19 AI app following principles of Critical Systems Thinking. The study is set to explore both process and outcomes of stakeholder engagement and draw recommendations for both.
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http://dx.doi.org/10.3233/SHTI231274 | DOI Listing |
J Prim Care Community Health
January 2025
Geisel School of Medicine at Dartmouth College, Hanover, NH, USA.
Introduction/objectives: Patients returning to the community from incarceration (ie, reentry) are at heightened risk of experiencing trauma when interacting with the healthcare system. Healthcare professionals may not recognize patients' trauma reactions or know how to effectively respond. This paper describes the development and pilot evaluation of a single-session training to prepare primary care teams to deliver trauma-informed care (TIC) to patients experiencing reentry.
View Article and Find Full Text PDFJ Intellect Dev Disabil
December 2024
Department of Nursing, Ōtākou Whakaihu Waka | University of Otago, Dunedin, New Zealand.
Background: People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community.
Method: A Participatory Action Research study was led, and participated in, by co-researchers with intellectual disabilities and disability service managers.
BMC Med Ethics
January 2025
Klinic Community Health, Winnipeg, MB, Canada.
Background: This study explored the ethical issues associated with community-based HIV testing among African, Caribbean, and Black (ACB) populations in Canada, focusing on their perceptions of consent, privacy, and the management of HIV-related data and bio-samples.
Methods: A qualitative community-based participatory research (CBPR) approach was employed to actively engage ACB community members in shaping the research process. The design included in-depth qualitative interviews with 33 ACB community members in Manitoba, Canada.
Glob Ment Health (Camb)
January 2025
Centre for Global Mental Health, London School of Hygiene & Tropical Medicine, London, UK.
As part of the formative work of the SUCCEED Africa consortium, we followed a participatory process to identify existing gaps and resources needed for the development and implementation of a rights-based intervention for people with lived experience of psychosis in Malawi, Nigeria, Sierra Leone and Zimbabwe. In 2021, we conducted a desk review of published and grey literature on psychosis in the four SUCCEED countries. Using an adapted version of the PRIME situation analysis template, data were extracted across the five domains of the WHO Community-Based Rehabilitation (CBR) Matrix: health, education, livelihoods, social and empowerment.
View Article and Find Full Text PDFRural Remote Health
January 2025
Indiana University School of Medicine, Indianapolis, Indiana, USA.
Introduction: Perceived social support is a psychological construct that is used to describe the 'perception of adequacy' of the support being provided by a person's social network. Higher perceived social support has been linked to multiple benefits across numerous studies over the past several decades and among multiple populations. The Multidimensional Scale of Perceived Social Support (MSPSS) is a 12-item scale to assess the construct of perceived social support.
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