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Indigenous Community Views of Disability in Canada: Protocol for a Scoping Review.
JMIR Res Protoc
March 2025
CIET-PRAM, Department of Family Medicine, McGill University, Montreal, QC, Canada.
Background: Indigenous people do not necessarily view disability in the same way as do other groups. Indigenous concepts of disability are connected to their ancestral history, cultural customs, and environmental context. Some Indigenous languages do not contain a word equivalent to disability.
View Article and Find Full Text PDFIntegrating patient and public involvement into co-design of healthcare improvement: a case study in maternity care.
BMC Health Serv Res
March 2025
Nuffield Department of Primary Care Health Sciences, Radcliffe Observatory Quarter, University of Oxford Nuffield, Woodstock Road, Oxford, OX2 6GG, UK.
Background: Despite recognition of the importance of patient and public involvement (PPI) in healthcare improvement, compelling examples of "what good looks like" for PPI in co-design of improvement efforts, how it might be done, and formalisation of methods and reporting are lacking. In this article, we sought to address these gaps through a case study to illustrate a principled approach to integrating PPI into the co-design of healthcare improvement.
Methods: The case study aimed to involve maternity service users in the co-design of clinical resources for a maternity improvement programme, using a four-stage approach: 1) establishing guiding principles for PPI in the programme, 2) structuring PPI for the programme, 3) co-designing improvements with PPI, and 4) seeking feedback on PPI in the co-design process.
Building a Decentralized Biobanking App for Research Transparency and Patient Engagement: Participatory Design Study.
JMIR Hum Factors
March 2025
de-bi, co., Baltimore, MD, United States.
Background: Patient-derived biospecimens are invaluable tools in biomedical research. Currently, there are no mechanisms for patients to follow along and learn about the uses of their donated samples. Incorporating patients as stakeholders and meaningfully engaging them in biomedical research first requires transparency of research activities.
View Article and Find Full Text PDFCo-Designing a Framework for Social Media Health Communication to Young People: A Participatory Research Study.
Health Expect
April 2025
Sydney Health Literacy Lab, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
Background: Social media became a key communication channel for public health agencies during the COVID-19 pandemic, especially for reaching younger populations less engaged with traditional channels. However, official social media health communication often fails to appeal to young people. Improving public health agency use of social media for health communication is vital to ensure health messages reach this priority population effectively, especially during public health emergencies.
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