AI Article Synopsis
- - The study examines the challenges faced by informal caregivers of adolescent and young adult (AYA) cancer patients with uncertain or poor prognoses (UPCP), highlighting the emotional and physical stress experienced by parents, siblings, friends, and partners.
- - Caregivers reported significant issues such as sleep problems, fear, loss, and altered family dynamics, which affected their relationships and social interactions.
- - Despite the high level of caregiver burden, the study suggests that tailored interventions considering the unique needs of this age group could help alleviate some of the challenges faced by these caregivers.
Article Abstract
A minority of adolescent and young adult cancer patients (AYA) live with an uncertain or poor prognosis (UPCP). Caring for a young, advanced cancer patient can lead to caregiver burden. This study aims to provide insight into burden on informal caregivers of AYA cancer patients with UPCP. In-depth, semistructured interviews were conducted with parents ( = 12), siblings ( = 7), friends ( = 7), and partners ( = 13). Thematic analysis was performed to derive themes from the data. Participants reported sleeping problems and stress. They struggle with uncertainty, fear, loss, and negative emotions. Family life is altered due to solely taking care of the children, but also the AYA. Contact with friends and family is changed. The relationship to the AYA can shift positively (e.g., becoming closer) or negatively (e.g., more conflict or no longer being attracted). Participants were under pressure, having to take on many responsibilities and multiple roles. In the financial domain, they report less income and often must continue working. A high amount of caregiver burden is experienced among informal caregivers of AYAs with UPCP. Yet only part of the impact appears to be age specific. Specific, age-adjusted interventions can be developed to lower the burden.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10780166 | PMC |
| http://dx.doi.org/10.3390/jcm13010158 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Impact of functional re-education and environmental adaptation in cancer patients with respiratory pathology: Study protocol.
PLoS One
January 2025
Department of Nursing and Physiotherapy, University of Salamanca, Salamanca, Spain.
Background: In recent years, cancer survival rates have increased exponentially. However, this rise in survival comes with a significant drawback. As the number of treatment lines has grown, so too have the side effects, which can severely impact patients' functionality and quality of life.
View Article and Find Full Text PDFBiomarkers.
Alzheimers Dement
December 2024
Brain-Computer Interfaces team, ESPCI Paris / PSL Research University, Paris, France.
Background: It is estimated that up to 80% of people with Alzheimer's disease (AD) may have some form of anosognosia. Anosognosia also constitutes a major source of stress for caregivers as it delays diagnosis and affects compliance with treatment. Here, we aimed to explore whether and how early anosognosia and caregiver burden could independently serve as indicators for identifying patients at risk of converting to AD.
View Article and Find Full Text PDFEffective Solutions for Caregivers of Older Adults: A Review of Systematic Reviews.
J Appl Gerontol
January 2025
NewCourtland Center for Transitions and Health, University of Pennsylvania School of Nursing, Philadelphia, PA, USA.
This umbrella review aims to describe caregiver interventions tested across populations of informal caregivers of older adults and to examine the effect of caregiver interventions on depression, burden, and quality of life across intervention types and care-recipient populations. PubMed, Scopus, APA PsycInfo, ABIM, Sociological Abstracts, PAIS, and EconLit databases were systematically searched. Forty systematic reviews were identified as meeting inclusion criteria.
View Article and Find Full Text PDFPublic Health.
Alzheimers Dement
December 2024
Federal University of Minas Gerais, Belo Horizonte, Minas Gerais, Brazil.
Background: Post-Covid syndrome is related to functional, cognitive, psychological and physical impairments in older adults, which has been associated with caregiver burden.
Method: Cross-sectional study nested within a prospective cohort, which recruited participants aged 60 and over, and their respective caregivers, twelve months after laboratory diagnosis of Covid-19. The project was approved by UFMG's ethics committee.
Objective: The aim of this study was to adapt the "Affiliated Stigma Scale" to Turkish for caregivers of people with dementia and determine its psychometric properties. The scale measures the affiliated stigma experienced by caregivers of people with dementia.
Method: We assessed the psychometric properties of Affiliated Stigma Scale in 218 adults who were primary caregivers for their relatives with dementia.
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!