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| http://dx.doi.org/10.1016/j.cppeds.2023.101554 | DOI Listing |
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Dementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
7072 mulago hill, Kampala, Uganda.
Background: In Uganda, caregivers of Alzheimer's disease and related dementias (ADRD) face complex challenges, often lacking specialized skills for effective caregiving. Despite the growing prevalence of ADRD in the country, there's a significant literature gap on caregiver selection and obstacles faced in urban and rural areas. This study aims to provide insights into the experiences of Ugandan caregivers, enhancing understanding of ADRD caregiving.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
University of Saint Joseph, West Hartford, CT, USA.
Background: Many individuals with health problems and/or disabilities are largely dependent on the help of an informal caregiver, most often a family member with whom they live (CDC Report, 2018). A recent report by the Alzheimer's Association (2023) found that, compared with caregivers of people without dementia, twice as many caregivers of those with dementia have reported significant emotional, financial, and physical difficulties. Despite the important role that caregivers have in our society, research on potential factors that may buffer the negative impacts of caregiving has been lacking.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
University of Utah School of Medicine, Salt Lake City, UT, USA.
Background: The scarcity of resources and caregiving services, a higher prevalence of health conditions, and financial concerns in rural areas in the United States have been well-documented. However, less research has compared experiences between caregivers of people with Alzheimer's disease and related dementias (ADRD) in rural versus urban areas. This study sought to address this gap by identifying those unmet service needs, explore factors associated with service use, and propose tailored strategies for better serving the needs of both rural and urban caregivers.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
University of British Columbia - Okanagan campus, Kelowna, BC, Canada.
Background: Memory Café, introduced by Dr. Bere Miesen in 1997, has become a global initiative fostering connections among individuals affected by dementia. This community-based platform facilitates interactions between dementia patients, caregivers, professionals, and the wider public, allowing for open sharing of experiences.
View Article and Find Full Text PDFDementia Care Research and Psychosocial Factors.
Alzheimers Dement
December 2024
University of Michigan, Ann Arbor, MI, USA.
Background: Despite an increasing prevalence of Alzheimer's disease and related dementias among Black older adults, large disparities remain in early diagnosis, treatment, and support service referral. Further, services intended to support family caregivers are typically designed around older adult spousal caregivers with little consideration to the wide diversity of families affected by dementia. This qualitative descriptive study examined the caregiving experiences of Black relatives of persons with dementia with the aim of informing the development of more culturally responsive support programming.
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