AI Article Synopsis
- Shared decision-making (SDM) is a collaborative process where healthcare professionals partner with families to make treatment decisions based on the family's values and care goals.
- Recent advancements in Dutch pediatric palliative care, like the Individual Care Plan (ICP) and the Evidence-Based Guideline on Pediatric Palliative Care (DGPPC), have spurred increased interest in SDM and Advance Care Planning (ACP).
- Despite these positive developments, a significant cultural shift is still needed among healthcare providers, moving away from a paternalistic mindset to one that values the input and priorities of families in care decisions.
Article Abstract
Shared decision-making (SDM) is a process in which health care professionals (HCPs) involve parents and children - when appropriate- to decide together on future treatment. These decisions are based on values that are important for the family, goals of care and preferences for future care and treatment. Elucidation of these values and preferences is preferably done early in the disease trajectory via so-called Advance Care Planning (ACP) conversations. In the Netherlands, ACP and SDM are being adopted by most health care professionals. This has happened only recently. Ten years ago, ACP and SDM were unknown concepts for the vast majority of Dutch HCPs. Today, interest in these conversational approaches is booming in both daily practice and in research. This rise has been reinforced by two recent major advancements in Dutch pediatric palliative care: the Individual Care Plan (ICP) and the Dutch Evidence-Based Guideline on Pediatric Palliative Care (DGPPC). Despite this positive evolution, a lot of work is still ahead. ACP and SDM demand a change in mindset from the traditional paternalistic approach by which the HCP 'knows what is best for this child' to a more humble and open approach in which (non-medical) factors that are important to the child and family and may influence the final treatment decision. Such changes in mindset don't happen overnight. In this article we describe the situation of pediatric palliative care in the Netherlands, with focus on the recent evolution of ACP and SDM.
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| http://dx.doi.org/10.1016/j.cppeds.2023.101549 | DOI Listing |
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