Shared decision-making in pediatric palliative care.

Curr Probl Pediatr Adolesc Health Care

Department of Pediatrics, University of Kansas City School of Medicine, USA; Department of Medical Humanities & Bioethics, University of Kansas City School of Medicine, USA; Bioethics Center, Children's Mercy-Kansas City, USA. Electronic address:

Published: January 2024

Shared decision-making (SDM) with parents and adolescents is normative in pediatric practice in North America. In this article we discuss how it is applicable to the practice of pediatric palliative care (PPC). As PPC itself is exemplary of patient-and-family-centered care, it often uses a SDM approach in clarifying patient and family preferences, goals, and values. This often occurs in an iterative process and across care environments, wherein the patient and family narrative is elaborated. Decisions are then made incorporating both evidence-based medical practice and the unique attributes and considerations of the patient and family.

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Source
http://dx.doi.org/10.1016/j.cppeds.2023.101551DOI Listing

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