"All about the value?" Decisional needs of breast reconstruction for breast cancer patients in the Chinese context: A mixed-methods study.

Patient Educ Couns

School of Nursing, Beijing University of Chinese Medicine, Beijing, People's Republic of China; Beijing University of Chinese Medicine Collaborating Center of Joanna Briggs Institute, Beijing, People's Republic of China; Beijing University of Chinese Medicine Best Practice Spotlight Organization, Beijing, People's Republic of China. Electronic address:

Published: March 2024

AI Article Synopsis

  • The study investigates breast cancer patients in China and their involvement in decisions regarding breast reconstruction, focusing on their specific needs and the reasons behind their decision-making struggles.
  • Utilizing interviews and surveys from patients and healthcare professionals in Beijing, the research reveals that most patients are open to reconstruction, but often lack vital knowledge and resources.
  • The findings highlight that these patients face complex decision-making challenges due to insufficient support and knowledge, indicating the necessity for culturally tailored information and better training for healthcare providers in shared decision-making.

Article Abstract

Objective: To explore breast cancer (BC) patients' participation in breast reconstruction (BR) decision-making and specific decisional needs, especially the manifestations and causes of decisional conflicts, in China.

Methods: A mixed-methods study was conducted using triangulation of data from interviews and a questionnaire survey with health care professionals (HCPs) and BC patients with BR decision-making experience at 5 Beijing centers. The Ottawa Decision Support Framework guided (ODSF) the qualitative and quantitative data analyses.

Results: A total of 82.53% of Chinese BC patients would consider BR. Seven themes captured patients' BR decisional needs per the ODSF: inadequate support/resources (100%, 58.82%) and knowledge (75%, 52.94%) were most frequently cited. Health beliefs (unclear values) reflected Chinese characteristics. Patients had inadequate knowledge (M=19.99/50, SD=8.67) but positive BR attitudes (M=59.48/95, SD=10.45).

Conclusions: BR decisions for Chinese BC patients are complex and often accompanied by decisional conflicts. Inadequate knowledge and inadequate support and resources contribute to these conflicts, emphasizing the need for culturally tailored information and support to promote SDM.

Practice Implications: HCPs need specialized training in SDM to guide patients in decision-making. It is essential to provide relevant resources and support that are culturally and clinically appropriate for Chinese patients.

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Source
http://dx.doi.org/10.1016/j.pec.2023.108102DOI Listing

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