Parents' Perception of the Benefit of Receiving a Patient Information Leaflet Prior to Attending a Craniofacial Multidisciplinary Team Appointment.

Objective: To investigate how a patient information leaflet describing what to expect during a craniofacial multidisciplinary team (MDT) appointment is experienced by parents of children with craniofacial anomalies (CFAs) and whether it helps with preparation for the appointment.

Design: Combination of qualitative and quantitative design.

Setting: Norwegian National Unit for Craniofacial Surgery.

Participants: Thirty-three parents of children with CFAs completed the questionnaire and fourteen were subsequently interviewed.

Interventions: A patient information leaflet, sent to all parents before their MDT appointment.

Main Outcome Measures: Descriptive questionnaire data and interview data.

Results: All parents (  =  33, 100%) found the leaflet easy to understand, while 31 (93.9%) found it provided helpful information. However, many first-time attendees still found the MDT setting overwhelming.

Conclusions: A leaflet may be helpful for parents when preparing for their child's MDT appointment. However, some parents may need additional support and information related to their child's treatment pathway.