AI Article Synopsis
- The study investigates the growing need for short-stay respite care for children with medical complexities (CMC) and their parents' preferences and willingness to pay for such services.
- A survey was conducted with 70 parents of CMC to compare hypothetical respite care facilities based on various attributes, revealing that parents prioritize high-quality medical care, particularly for managing ventilators.
- The findings indicate strong demand for advanced medical care in respite services, with parents willing to pay approximately 75,367 JPY per night for the best care options available.
Article Abstract
Background: The number of children with medical complexity (CMC) is increasing worldwide. For these children and their families, various forms of support are legislated; among them, short-stay respite care has a great unmet need. We examined such children's parents' preferences for respite care and their willingness to pay.
Methods: We used discrete choice experiments (DCEs) to estimate the parents' preferences and willingness to pay. Parents whose children used overnight short-stay respite services answered a questionnaire to compare two hypothetical facilities of respite care having seven attributes and three levels. The DCE data was analyzed using the conditional logit model. The willingness to pay was calculated based on DCE estimates.
Results: A total of 70 parents participated in this study and mean age of their children was 7.8 years (standard deviation [SD] 4.3). Among those children, 67 (96%) had the severest certification of disability, and 27 (38%) used a ventilator at home. We found that the parents' highest preferences was the best level of medical care level that can manage ventilators (coefficient 1.61, 95% confidence interval [CI]: 1.32-1.90). The better and best level of medical care, daily care, education/nursing, and emergency care were preferred over basic quality services. Willingness to pay for the best level of medical care was approximately 75,367 JPY per night.
Conclusion: This study shows a need for respite care that can deliver high-level medical care, especially for the management of ventilators, to CMC. This finding can serve as a basis for promoting respite care services.
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| http://dx.doi.org/10.1111/ped.15703 | DOI Listing |
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