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The value of privacy for people with dementia.
Front Psychiatry
January 2025
Ethics in Medicine, Carl von Ossietzky Universität Oldenburg, Oldenburg, Germany.
Introduction: The concept of privacy marks an astonishing gap in the discussion about care for people with dementia (PwD). In general, questions of privacy play an important role and attract much attention in the ethics of nursing care. Yet, when it comes to dementia care, there is hardly any systematic ethical debate on the topic at all.
View Article and Find Full Text PDFPandemic antigones: The role of women in shaping funeral practices in Chile.
Death Stud
January 2025
Social Sciences Faculty, Universidad de Chile, Santiago, Chile.
This study, conducted in 2020, investigates the impact of health restrictions on funeral rites during the COVID-19 pandemic in Chile, based on the experience of women who took part in these rites. Using Antigone's tragedy as a theoretical framework, it explores the tension between the moral law of honoring the deceased and the universal law manifested in pandemic-related restrictions-four semi-structured online interviews with women in Santiago who engaged in adapted funeral practices. The qualitative analysis revealed that participants developed innovative rituals to maintain the dignity of farewells and reintegrate the deceased into public and symbolic spheres, such as virtual gatherings and personalized tributes.
View Article and Find Full Text PDFDesign and implementation of an action plan for justice, equity, diversity, and inclusion within the Clinical Genome Resource.
Am J Hum Genet
January 2025
National Human Genome Research Institute, National Institutes of Health (NIH), Bethesda, MD, USA.
How might members of a large, multi-institutional research and resource consortium foster justice, equity, diversity, and inclusion as central to its mission, goals, governance, and culture? These four principles, often referred to as JEDI, can be aspirational-but to be operationalized, they must be supported by concrete actions, investments, and a persistent long-term commitment to the principles themselves, which often requires self-reflection and course correction. We present here the iterative design process implemented across the Clinical Genome Resource (ClinGen) that led to the development of an action plan to operationalize JEDI principles across three major domains, with specific deliverables and commitments dedicated to each. Active involvement of consortium leadership, buy-in from its members at all levels, and support from NIH program staff at pivotal stages were essential to the success of this effort.
View Article and Find Full Text PDFHow Latine youth's positive development unfold through farmwork in rural migrant farmworker families in the U.S. Midwest.
J Res Adolesc
March 2025
Department of Public Health, Purdue University, West Lafayette, Indiana, USA.
Some Latine youth from rural migrant farmworker communities engage in farmwork to help support themselves and their families. Although research has documented their motives for working and some characteristics of their employment, knowledge about how these youth construct their work in the fields and how such experiences relate to their positive development is needed to depict their holistic experiences. Using mixed methods, we explored youth's farmwork experiences and examined how these experiences relate to youth's prosocial behaviors, civic responsibility, and ego-resiliency.
View Article and Find Full Text PDFPreserving Creativity in Nurse Education.
Nurs Sci Q
January 2025
College of Nursing, California Baptist University, Riverside, CA, USA.
In this column on the humanbecoming teaching-learning model, the author explores creativity in nurse education as an alternative to routinized learning strategies. There is an explanation of the American Association of Colleges of Nursing (AACN) Essentials, domains, competencies, subcompetencies, concepts, and spheres of care, followed by an explanation of competency-based education. These topics are contrasted with the humanbecoming paradigm and the humanbecoming teaching-learning model.
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