Purpose: To examine how former caregivers for parents living with dementia engage in personal health planning.
Design: An inductive, qualitative study.
Setting: Virtual, audio-recorded, semi-structured interviews.
Participants: Thirty-two midlife former primary caregivers for parents who died following advanced dementia 3 months to 3 years prior.
Method: Participants responded to a series of open-ended interview prompts. Interview recordings were transcribed and evaluated by a trained, diverse team to generate Consensual Qualitative Research (CQR) domains and categories.
Results: Caregivers developed (ie, mindsets regarding willingness and ability to engage in personal health planning) that guided (ie, ). An involved feeling capable of engaging in and arose when caregivers witnessed the impact and feasibility of their parents' health planning and arose when caregivers faced barriers (eg, low self-efficacy, lack of social support, perception that parent's health planning did not enhance quality of life) and concluded that personal health planning would not be valuable or feasible.
Conclusion: Caregiving for a parent living with dementia (PLWD) shapes former caregivers' personal health planning. Interventions should support former caregivers who have developed low self-efficacy or pessimistic views on healthy aging to support them in addressing health planning activities.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10922991 | PMC |
| http://dx.doi.org/10.1177/08901171231204670 | DOI Listing |
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