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Mapping the parent experience of echolalia in autism spectrum disorder onto a conceptual taxonomy. | LitMetric

Mapping the parent experience of echolalia in autism spectrum disorder onto a conceptual taxonomy.

Int J Speech Lang Pathol

Melbourne Graduate School of Education, The University of Melbourne, Melbourne, Australia.

Published: December 2024

AI Article Synopsis

  • The study explores how parents perceive echolalia in children with autism spectrum disorder (ASD) and contrasts these views with traditional clinical paradigms, namely behaviourism and developmentalism.
  • Through interviews with 126 parents of children aged 3 to 34 years, the research uncovered that these parents experience and interpret echolalia in diverse ways that differ from existing clinical frameworks.
  • The findings suggest that understanding the parents' perspectives is crucial for improving interventions and support strategies, as conventional clinical views may not fully resonate with their experiences.

Article Abstract

Purpose: Echolalia, the repetition of previously heard speech, is prevalent in a variety of neurologic and psychiatric disorders. Within the context of echolalia in autism spectrum disorder (ASD), research and intervention historically assume a clinical standpoint with two opposing paradigms: behaviourism and developmentalism. The literature is largely silent on how those other than researchers and clinicians understand echolalia. This study examined how parents experience echolalia through their children with ASD. The aim of the study was to ascertain if the parental perception of echolalia in ASD aligns with, or offers alternative perspectives to, current clinically-orientated views.

Method: We employed online semi-structured interviews to document the experiences of 126 parents, reflecting on their children with ASD aged 3 to 34 years of age, to determine if the parent experience could be mapped onto existing clinical frameworks, or if they might offer new perspectives. We used hermeneutic phenomenological data analysis in an abductive framework.

Result: Echolalia has predominantly been represented in literature through the perspectives of behaviourism or developmentalism. We found however, that echolalia is a phenomenon that is experienced by parents in a variety of different ways to that of the current clinically-orientated understandings. Such new ways of understanding echolalia that emerged from our analysis include one understanding which is dependent upon how echolalia is heard, and one in which parents are "waiting for echolalia to evolve."

Conclusion: The traditional dichotomous clinical positions do not resonate with all parents, and reliance on these traditional perspectives alone may impact effective engagement with parents and the success of interventions and support strategies. Our findings have implications for future research, the education of clinicians and educators, and the design of support and intervention for those who have echolalia.

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Source
http://dx.doi.org/10.1080/17549507.2023.2244201DOI Listing

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