AI Article Synopsis
- A national organization for ectodermal dysplasias has been established to raise awareness about this rare congenital condition.
- Educating families and healthcare providers is crucial for effective management of patients with this disorder.
- Pediatric otolaryngologists play a key role in the healthcare team, providing specialized care for children with ectodermal dysplasias.
Article Abstract
The recent formation of a national organization for ectodermal dysplasias has focused attention on this unusual congenital problem. In any rare condition, information dissemination is essential in order to appropriately educate the patients' families and the physicians caring for them. The otolaryngologist is a vital component of the health care team managing these patients. An overview of the disease process is presented with special emphasis placed on the role of the pediatric otolaryngologist in the care of children with ectodermal dysplasias.
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| http://dx.doi.org/10.1016/s0165-5876(86)80044-1 | DOI Listing |
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