AI Article Synopsis

  • A study aims to evaluate if a patient-centered mobile application offering personalized guidance and peer support can improve the quality of life for stoma patients.
  • The trial will involve consenting adults over 18 receiving ileostomy or colostomy, with an intervention group using a comprehensive version of the app and a control group using a basic version.
  • The primary outcome will measure quality of life three months post-surgery, alongside secondary outcomes like psychological adaptation and hospital re-admission rates.

Article Abstract

Aim: Proper education, guidance and support is crucial before and following creation of a stoma. Patients with a stoma and their close relatives need to adapt to and cope with this new - and sometimes unforeseen - situation, which may result in insecurities and a variety of psychosocial problems. Self-efficacy is associated both with a reduction in psychosocial problems and with improved quality of life. The main objective of this study was to investigate whether self-reported quality of life of patients with a stoma can be enhanced by offering personalized and timed guidance, as well as peer contact, in a patient-centred mobile application.

Method: A multicentre, double-blind, randomized controlled trial will be conducted. Consented adults >18 years of age who will receive an ileostomy or colostomy and possess an eligible smartphone will be included. The intervention group will be given the full version of the application (containing personalized and timed guidance, such as operation-specific information and information on the associated care pathway) to install on their smartphone. In addition, the intervention group has access to a protected peer-support platform within the app. The control group will receive a restricted version of the application that contains only generic (non-personalized) stoma-related information. The primary outcome is quality of life, 3 months postoperatively. Secondary outcomes are Patient Reported Outcome Measures (PROMs), such as psychological adaption, as well as number of complications, re-admission and re-operation rates and the length of hospital stay.

Results: Patient enrolment began in March 2021. Data collection was not complete when this protocol was submitted.

Conclusion: We hypothesize that patients with a stoma who are supported by the intervention version of the app will report a significantly higher quality of life than patients with a stoma who are supported by the control version of the app (ie, are not offered personalized and timed guidance and information and do not have access to peer support in the app).

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Source
http://dx.doi.org/10.1111/codi.16694DOI Listing

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