AI Article Synopsis
- The study aimed to explore how developers perceive patient versions of guidelines (PVGs) and to identify challenges they face during development, with the goal of improving future PVG methodologies.
- Researchers conducted semi-structured interviews with 12 PVG developers in China, employing qualitative analysis to gather insights into their experiences and challenges.
- Developers viewed PVGs as essential health education tools that should be patient-oriented, facing issues like lack of standardized guidance, difficulties in patient engagement, and inadequate platforms for dissemination.
Article Abstract
Objective: To understand developers' perception of patient (versions of) guidelines (PVGs), and identify challenges during the PVG development, with the aim to inform methodological guidance for future PVG development.
Methods: We used a descriptive qualitative design. Semi-structured interviews were conducted virtually from December 2021 to April 2022, with a purposive sampling of 12 PVG developers from nine teams in China. Conventional and directed content analysis was used for data analysis.
Results: The interviews identified PVG developers' understanding of PVGs, their current practice experience, and the challenges of developing PVGs. Participants believed PVGs were a type of health education material for patients; therefore, it should be based on patient needs and be understandable and accessible. Participants suggested that PVGs could be translated/adapted from one or several clinical practice guidelines (CPG), or developed de novo (i.e., the creation of an entirely new PVG with its own set of research questions that are independent of existing CPGs). Participants perceived those existing methodological guidelines for PVG development might not provide clear instructions for PVGs developed from multiple CPGs and from de novo development. Challenges to PVG development include (1) a lack of standardized and native guidance on developing PVGs; (2) a lack of standardized guidance on patient engagement; (3) other challenges: no publicly known and trusted platform that could disseminate PVGs; concerns about the conflicting interests with health professionals.
Conclusions And Practice Implications: Our study suggests clarifying the concept of PVG is the primary task to develop PVGs and carry out related research. There is a need to make PVG developers realize the roles of PVGs, especially in helping decision-making, to maximize the effect of PVG. It is necessary to develop native consensus-based guidance considering developers' perspectives regarding PVGs.
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| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10367247 | PMC |
| http://dx.doi.org/10.1186/s12913-023-09591-5 | DOI Listing |
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