AI Article Synopsis
- Informal caregivers in rural areas often lack adequate support for palliative care due to a scarcity of community resources.
- A mixed-methods study involving 44 caregivers revealed significant unmet needs for information and support regarding end-of-life care and pain management.
- Key identified needs included access to trained home health providers, grief counseling, respite care, and a centralized contact for community assistance.
Article Abstract
Informal caregivers caring for patients at the end of life in rural geographic areas may have inadequate support due to insufficient community-based palliative care services. We conducted a parallel mixed-methods study to understand informal caregivers' unmet supportive, educational, and informational needs living in rural areas with limited community-based palliative care services. Forty-four caregivers of loved ones that died at home between December 2017 and September 2020 completed the Carer Support Needs Assessment Tool (CSNAT) and 14 caregivers were interviewed. Using a parallel mixed analysis, results showed that caregiver distress was associated with unmet information needs about how to accurately assess and manage pain levels and identify signs and symptoms of end-of-life. Caregivers needed more support related to available, knowledgeable, and well-trained home health care providers, accessible equipment, 24-hour respite care, accessible grief counseling, and a central triage contact number for community support.
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| http://dx.doi.org/10.1080/07481187.2023.2230551 | DOI Listing |
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