COVID-19-related disruptions in implementation of a randomized control trial: An autoethnographic report.

Appl Nurs Res

Department of Rheumatology, Allergy, and Immunology, Chang Gung Memorial Hospital, No.5, Fu-Hsin St., Guishan Dist., Taoyuan City 333, Taiwan; School of Nursing, Chang Gung University of Science and Technology, Taiwan. Electronic address:

Published: August 2023

Background And Aims: The SARS-Cov-2 virus (COVID-19) has not only threatened the health of the world's population but also presented challenges for conducting human subject research studies. Although many institutions have now established guidelines for conducting research during the COVID-19 pandemic, reports of the practical experiences of researchers are limited. This report presents the challenges nurse researchers encountered when conducting a randomized controlled trial to develop an arthritis self-management application during the COVID-19 pandemic in Taiwan and how researchers responded to the challenges.

Methods: Qualitative data from five nurse researchers were collected from August 2020 to July 2022 at a rheumatology clinic in northern Taiwan. This collaborative autoethnographic report was drawn from data comprised of detailed field notes and weekly discussions regarding research challenges we were confronting. Data were analyzed to determine successful strategies employed to overcome the challenges and allow for completion of the study.

Results: Minimizing the risk of exposure to the virus for researchers and participants resulted in four major challenges to conducting our research: patient screening and recruitment, delivery of the intervention, obtaining follow-up data, and unanticipated budget increases.

Conclusions: Challenges reduced sample size, altered intervention delivery, increased time and money beyond what was originally budgeted, and delayed completion of the study. Adapting to a new healthcare environment required flexibility for recruitment, alternate means of providing intervention instructions, and an awareness of disparities in participants' internet proficiency. Our experiences can serve as an example for other institutions and researchers faced with similar challenges.

Download full-text PDF

Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10275655PMC
http://dx.doi.org/10.1016/j.apnr.2023.151698DOI Listing

Publication Analysis

Top Keywords

autoethnographic report
8
challenges conducting
8
covid-19 pandemic
8
nurse researchers
8
challenges
7
researchers
6
covid-19-related disruptions
4
disruptions implementation
4
implementation randomized
4
randomized control
4

Similar Publications

Remediating Cambridge: Human and Horse Co-Relationality in a Culture of Mis-Re-Presentation.

Animals (Basel)

January 2025

English Literary Studies, School of Humanities, Arts and Social Sciences (HASS), University of New England, Armidale, NSW 2351, Australia.

This case study aims to problematise concepts of equine and human co-relational agency in the context of 'mis-re-presentations' in the Australian media of harms experienced by the Anglo Arab stallion, Cambridge, following his development of laminitis and his consequent confinement at a leading national Equestrian centre. Autoethnographic narrative is used to retrospectively and selectively narrate the evolving relationship between Cambridge and his owners, farrier, and treating veterinarians within the dominant housing and veterinary practices and welfare paradigms in equestrian culture of 1990's Australia. Structured author/owner autoethnographic vignettes are framed by newspaper and internet reportage to highlight a productive tension between the public mediation of the case, and what it means to be fully embodied in relationship with an equine companion agent within a particular, racialised, gendered, and biopoliticised location.

View Article and Find Full Text PDF
Article Synopsis
  • User participation is essential for healthcare research funding in Norway, but it presents challenges for both researchers and users, particularly when users are professionals in healthcare and research.
  • This study employed collaborative autoethnography to examine personal experiences and reflections of researchers during the user involvement process, focusing on how collaboration impacted their sense of identity.
  • The findings highlight complexities in user involvement, revealing themes like motivation, competing paradigms, hierarchy, and dual roles, suggesting that researchers often felt ambivalent and concerned about losing control over their research direction.
View Article and Find Full Text PDF

O le Fau Gagana: A Samoan Mental Health Nurse in Aotearoa-New Zealand.

J Psychiatr Ment Health Nurs

February 2025

Faculty of Health and Environmental Sciences, Auckland University of Technology, Auckland, New Zealand.

Introduction: This article explores my journey as a Samoan woman who migrated as a young mother to Aotearoa-New Zealand, completed nursing qualifications, later specialising in mental health nursing, and eventually completed doctoral studies. Since July 2023 I have been a Lecturer in the Department of Nursing, Faculty of Health and Environmental Studies, Auckland University of Technology.

Methods: This article uses autoethnographic and narrative methods to collect data from my own life, to explore the experiences of Samoan people in the mental health system of Aotearoa-New Zealand.

View Article and Find Full Text PDF

Background: In rare diseases, limited access to services and rare disease experts may force families to act as medical advocates for their child; they can volunteer to support clinician-initiated research or initiate and lead research themselves. Ketotic Hypoglycemia International (KHI) is a new, global organization for families affected by idiopathic ketotic hypoglycemia (IKH) and is run solely by volunteers. Doing research together, families and international experts in a collaborative process such as at KHI, also referred to as patient and public involvement and engagement (PPIE) or extreme citizen science, is often praised for its positive effects on the research and the stakeholders involved.

View Article and Find Full Text PDF

The coronavirus pandemic provoked worldwide changes to the workplace, leading to rapid changes in lifestyles and working conditions. While organizations and governments struggled to develop regulations and policies, individuals were forced to find ways to manage work and life. During the pandemic and quarantine, a group of knowledge workers from around the world convened virtually and agreed to use qualitative autoethnographic methods to study how the quarantine disrupted their conventional patterns of work and care.

View Article and Find Full Text PDF

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!