This article explored the ways in which living with dementia brings potentials to queer the concept of "successful aging" and associated notions of being human. Regarding the progressive development of dementia, it can be assumed that people affected, no matter how hard they try, will sooner or later fail to age successfully. They increasingly become a symbol of what is called the "fourth age" and are framed as an essentialized other. Based on statements of people with dementia, it will be examined to what extent the position on the outside enables people affected to abandon societal guiding ideals and undermine hegemonic-dominant notions of aging. It is shown how they develop life-affirming ways of being-in-the-world that run counter to the idea of the rational, autonomous, consistent, active, productive, and healthy human beings.
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http://dx.doi.org/10.3389/fsoc.2023.1139271 | DOI Listing |
J Palliat Med
January 2025
Division of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, Colorado, USA.
Dementia clinical trials often fail to include diverse and historically minoritized groups. We sought to adapt the Alzheimer's Disease and Related Dementias-Palliative Care (ADRD-PC) clinical trial to improve enrollment and address the cultural needs of people with late-stage ADRD who identify as Hispanic or Latino and their family caregivers. Bilingual, bicultural research team members adapted study materials and processes using the Cultural Adaptation Process Model.
View Article and Find Full Text PDFGerontologist
January 2025
Center for Healthcare Delivery Sciences, Department of Medicine and Division of Pharmacoepidemiology and Pharmacoeconomics, Brigham and Women's Hospital, Boston, Massachusetts, USA.
Background And Objectives: Care partners are critical for making treatment decisions in persons living with dementia. However, identifying them is challenging, hindering the broader use of interventions, such as those using digital technologies. We aimed to (i) assess the feasibility of identifying and contacting care partners using electronic health record (EHR) systems, and (ii) elicit their perspectives on electronic interventions for deprescribing.
View Article and Find Full Text PDFResearch suggests that the quality of care provided by family members may be influenced by the quality of relationship they have with the person living with dementia. The study investigated this in the context of assisting with daily activities. The quality of the relationship was assessed using the conceptual framework of relationship continuity/discontinuity which focuses on whether the carer experiences their relationship as continuous or discontinuous with the pre-dementia relationship.
View Article and Find Full Text PDFRes Involv Engagem
January 2025
, Suffolk, UK.
Involving people living with dementia in the development of research through PPIE is the gold standard for ethical research. Established PPIE groups have been set up throughout the UK to provide people with dementia opportunities to have their voice heard. However, accessing these groups as a doctoral researcher can be difficult, and little guidance is given on how to make the process successful.
View Article and Find Full Text PDFDementia (London)
January 2025
Department of Primary Care & Mental Health, University of Liverpool, UK.
Up to 60% of people living with dementia who reside in care homes will 'wander' at some point. A person-centred approach should be taken to support each person's individual needs through tailored interventions when wandering. This study aimed to identify care home staff perspectives on what supports safe wandering for people living with dementia in care home environments.
View Article and Find Full Text PDFEnter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!