Introduction: For people living with cerebral palsy, it is crucial to determine and monitor their quality of life because it indirectly can predict the completion of their needs and wishes, and their health-related conditions can be subjectively judged. Cerebral palsy is one of the the most common causes of childhood-onset, probably this is the reason why most quality of life studies focus on children and not on adolescents or adults.
Objectives: The aims of this study were to explore the quality of life of teenagers living with cerebral palsy receiving conductive education provided by the Pető András Faculty of Semmelweis University, and to map the differences and similarities between the perceptions of parents and their adolescent children.
Method: This is a descriptive, cross-sectional study. We used the CP QoL-Teen quality of life questionnaire for adolescents living with cerebral palsy. 60 adolescents who were diagnosed with cerebral palsy and receive conductive education took part in the research together with their parents. The caregivers answered the proxy version of the CP QoL Teen questionnaire.
Results: In the population we examined, there is no significant difference between the answers given by parents and teenagers. The highest agreement was found in the chapter of social wellbeing (p = 0.982).
Conclusions: This study highlights the importance of social relationships in achieving a better quality of life for teenagers living with cerebral palsy. Furthermore, it also points out the high adaptability of the relationship between parents and their adolescent children. Orv Hetil. 2023; 164(24): 948-953.
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