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International workshop: what is needed to ensure outcome measures for Rett syndrome are fit-for-purpose for clinical trials? June 7, 2023, Nashville, USA.
Trials
December 2024
School of Medicine Depts of Pediatrics, Neurology and Pharmacology, Children's Hospital Colorado/University of Colorado, 12800 E 19th, MS8102, Aurora, CO, 80045, USA.
Introduction: The clinical, research and advocacy communities for Rett syndrome are striving to achieve clinical trial readiness, including having fit-for-purpose clinical outcome assessments. This study aimed to (1) describe psychometric properties of clinical outcome assessment for Rett syndrome and (2) identify what is needed to ensure that fit-for-purpose clinical outcome assessments are available for clinical trials.
Methods: Clinical outcome assessments for the top 10 priority domains identified in the Voice of the Patient Report for Rett syndrome were compiled and available psychometric data were extracted.
The first 100 days of the mpox response in Africa.
Lancet
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Department of Child Dental Health, Obafemi Awolowo University, Ile-Ife, Nigeria.
New postoperative atrial fibrillation after in OR extubation after cardiac surgery - A response to a letter to the editor.
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December 2024
Department of Anesthesiology, Perioperative Care and Pain Medicine, NYU Langone Health, 550 First Avenue, New York, NY 10016, USA. Electronic address:
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Trends Cogn Sci
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Institute of Philosophy, School of Advanced Study, University of London, London, UK. Electronic address:
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Department of Emergency Medicine, Hamad Medical Corporation, Hamad General Hospital, Doha, Qatar; Department of Emergency Medicine, Blizard Institute, Queen Mary University, London, UK. Electronic address:
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