Context: Significant differences exist in the needs of an adult patient and those of a sick child with members of his or her family involved. Monitoring questionnaires of patients and their family members can show ways to improve medical care and develop methods for effective staff behavior. The Consumer Assessment System for Healthcare Service Providers and Systems (CAHPS) helps hospitals, using management data, to identify strengths and weaknesses, determine what needs improvement, and track progress over time.
Objective: The study intended to identify the most effective methods for monitoring patients and their families in pediatric hospitals, which can lead to the achievement of high-level medical care.
Design: The research team performed a narrative review by searching the Agency for Healthcare Research and Quality, PubMed Central, and the National Library of Medicine databases for scientific studies and reports from researchers who have used the innovations from CAHPS in their practices. The search used the keywords children and hospital, improving the quality of service, coordination of care, and medical care.
Setting: The study took place in the Department of Pediatric Hematology, Oncology and Transplantation at the Medical University of Lublin in Lublin, Poland.
Outcome Measures: The research team analyzed the selected studies to find specific, applicable, and successful monitoring methodology.
Results: The study examined many important aspects of the stay of children in a hospital and of the difficulties that young patients and their families face and identified the most effective monitoring methods for various areas that affect the interests of a child and his or her family within the walls of the hospital.
Conclusions: This review provides direction for medical institutions, allowing the possibility of improving the quality of patient monitoring. Researchers have carried out few studies in pediatric hospitals today, and the field needs further study.
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Orphanet J Rare Dis
January 2025
Department of Pediatrics, Guangdong Provincial People's Hospital, The Second School of Clinical Medicine, Guangdong Academy of Medical Sciences, Southern Medical University, Guangzhou, 510080, China.
Background: Hepatic glycogen storage diseases (GSD) are inborn errors of metabolism with abnormal storage or utilization of glycogen, a complex disease with significant genetic heterogeneity and similar clinical manifestations. This study aimed to describe the gastrointestinal symptoms and endoscopic features of hepatic GSD, including types Ia, Ib, III, VI, and IX, to provide evidence for etiology and treatment.
Methods: A national cohort survey questionnaire was distributed to patients diagnosed with GSD type Ia, Ib, III, VI, and IX through genetic testing or their parents in mainland China in May 2022.
Ann Gen Psychiatry
January 2025
National Directorate-General for Hospitals, Budapest, Hungary.
Objective: This study examined mental health literacy and predictors of disorder recognition among primary care providers (PCPs) in Hungary.
Methods: 208 PCPs in Hungary completed a survey assessing demographics, mental health stigma, and exposure to mental health (i.e.
Orphanet J Rare Dis
January 2025
Laboratory of Neurogenetics and Molecular Medicine, Center for Genomic Sciences in Medicine, Institut de Recerca Sant Joan de Déu, Únicas SJD Center, Hospital Sant Joan de Déu, Barcelona, Spain.
Background: Rare diseases (RDs) are a heterogeneous group of complex and low-prevalence conditions in which the time to establish a definitive diagnosis is often too long. In addition, for most RDs, few to no treatments are available and it is often difficult to find a specialized care team.
Objectives: The project "acERca las enfermedades raras" (in English: "bringing RDs closer") is an initiative primary designed to generate a consensus by a multidisciplinary group of experts to detect the strengths and weaknesses in the public healthcare system concerning the comprehensive care of persons living with a RD (PLWRD) in the region of Catalonia, Spain, where a Network of Clinical Expert Units (Xarxa d'Unitats de Expertesa Clínica or XUEC) was created and is being implemented since 2015.
BMC Pregnancy Childbirth
January 2025
Department of Obstetrics, the Affiliated Hospital of Qingdao University, Qingdao, China.
Background: Currently, most studies only focus on the glucose management level and self- management behavior of pregnant women with gestational diabetes mellitus, but lack analysis and discussion on their decision-making behavior and influencing factors during glucose management.
Aim: This study aimed to investigate the decision-making behavior of blood glucose management and its influencing factors among pregnant women with gestational diabetes mellitus in China.
Methods: This was a prospective study.
Turk Arch Pediatr
January 2025
Department of Pediatrics, Apollo Children's Hospital, Chennai, Tamil Nadu.
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