Human Genetics Society of Australasia Position Statement: Genetic Testing and Personal Insurance Products in Australia.

Twin Res Hum Genet

The University of Sydney, Faculty of Medicine and Health, Sydney School of Public Health, Sydney Health Ethics, Sydney, New South Wales, Australia.

Published: April 2023

AI Article Synopsis

  • The rise of genetic and genomic testing has heightened awareness of its effects on insurance, as providers can use genetic information to influence premiums and coverage eligibility.
  • In Australia, insurers updated regulations in 2019 to prohibit the use of genetic test results in life insurance underwriting for policies under AU$500K.
  • The Human Genetics Society of Australasia has revised its stance on genetic testing and insurance, recommending that educational programs cover ethical issues, government regulation improve, research data remain confidential, and better collaboration occur between the insurance industry and genetics experts.

Article Abstract

The expansion of genetic and genomic testing in clinical practice and research, and the growing market for direct-to-consumer genomic testing has led to increased awareness about the impact of this form of testing on insurance. Genetic or genomic information can be requested by providers of mutually rated insurance products, who may then use it when setting premiums or determining eligibility for cover under a particular product. Australian insurers are subject to relevant legislation and an industry led standard that was updated in 2019 to introduce a moratorium on the use of genetic test results in life insurance underwriting for policies

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Source
http://dx.doi.org/10.1017/thg.2023.11DOI Listing

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