Communicating the diagnosis of a genetic entity/rare disease to a patient or their parents is a complex process; it requires the doctor, pediatrician, or geneticist to display good communication skills and knowledge in a moment of uncertainty and disorientation for the family group, and sometimes in an inappropriate environment or under time constraints [...].
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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10137230 | PMC |
http://dx.doi.org/10.3390/children10040672 | DOI Listing |
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