The Experience of Facilitating Inclusive Research Advisory Groups With Parents and People With Intellectual Disability and/or Autism Spectrum Disorder.

ANS Adv Nurs Sci

Faculty of Health and Human Sciences and Health Clinic, Southern Cross University, Lismore, New South Wales, Australia (Drs Cashin and Howie and Ms Pracilio); School of Allied Health, Exercise and Sports Sciences, Charles Sturt University, Port Macquarie, New South Wales, Australia (Dr Kersten); Nursing & Midwifery, Monash University, Peninsula Campus, Frankston, Victoria, Australia (Dr Morphet); College of Emergency Nursing Australasia (CENA), Hobart, Tasmania, Australia (Dr Morphet); Australian Primary Health Care Nurses Association, Melbourne, Victoria, Australia (Mr Griffin); Department of Developmental Disability Neuropsychiatry, School of Psychiatry, UNSW Medicine & Health, UNSW Sydney, New South Wales, Australia (Dr Trollor); and School of Nursing and Midwifery, Western Sydney University, Hawkesbury Campus, Richmond, New South Wales, Australia (Dr Wilson).

Published: April 2023

There is little nursing research about process issues in conducting inclusive project advisory groups of people with autism and/or intellectual disability or those who are parents/carers of this cohort. Through a descriptive qualitative design, this article aims to analyze the processes, challenges, and solutions when facilitating these groups for a nursing project in Australia. Reflexive thematic analysis was utilized to analyze field notes and meeting minutes. Results highlight the need for a defined, robust communication process between researchers and advisory groups, skilled facilitators, and careful planning of when in the life of the project the groups can contribute meaningfully. This project offers a proposed framework for the valuable contribution of lived experiences from research advisory groups.

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Source
http://dx.doi.org/10.1097/ANS.0000000000000497DOI Listing

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