Patient Advocates and Researchers as Partners in Cancer Research: A Winning Combination.

Am Soc Clin Oncol Educ Book

Dana-Farber Cancer Institute, Harvard T. H. Chan School of Public Health, Harvard Medical School, The Broad Institute of Harvard and MIT Boston, MA.

Published: May 2023

AI Article Synopsis

  • Inclusion of advocates in research is now mandated by many international funding agencies, emphasizing their crucial role.
  • Advocates are involved across all research areas, including basic cancer research and clinical trials, enhancing collaboration despite the challenges faced.
  • The text aims to define patient advocacy, detail advocate engagement, and provide insights into training programs that facilitate partnership between advocates and researchers.

Article Abstract

Inclusion of advocates as partners in research is now required by numerous international funding agencies. The role of advocates has expanded in recent years to include all areas of research, including basic cancer research, translational research, and clinical trial design and development. The involvement of advocates as partners in cancer research can be challenging for the advocate and for the researchers, but this collaboration is beneficial to all involved. Herein, we will define patient advocacy, explore advocate engagement, and share information on programs that train advocates and researchers to work together as partners.

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Source
http://dx.doi.org/10.1200/EDBK_100035DOI Listing

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