AI Article Synopsis

  • * Using the Theory of Change, the intervention was created through collaborative workshops and meetings involving various stakeholders, including care providers and those living with dementia, leading to three main focus areas: systems development, tailored care delivery, and building capacity.
  • * The process faced challenges due to the COVID-19 pandemic, but plans for a feasibility and implementation study will test whether the intervention can be effectively executed in primary care settings, with the potential for adaptation in other health and social care systems worldwide.

Article Abstract

Background: The need to improve support following a diagnosis of dementia is widely recognised, but it is unclear how this can best be achieved within UK health and social care systems. A task-shared and task-shifted approach has been recommended, but there is limited guidance on how to achieve this in practice. As part of a programme of research, we developed an intervention to enhance the role of primary care in post-diagnostic care and support for people living with dementia and carers.

Methods: We used the Theory of Change to develop a complex intervention informed by initial literature reviews and qualitative work. The intervention was developed through an iterative series of workshops, meetings and task groups with a range of stakeholders, including the multidisciplinary project team, people living with dementia and carers, service managers, frontline practitioners, and commissioners.

Results: 142 participants contributed to intervention development through face-to-face or virtual meetings. The intervention comprises three complementary strands of work focusing on: developing systems, delivering tailored care and support, and building capacity and capability. Clinical dementia leads, based in primary care networks, will facilitate the intervention providing tailored expertise and support.

Conclusion: The Theory of Change proved useful in providing structure and engaging stakeholders. The process was challenging, took longer and was less participative than intended due to restrictions caused by the COVID-19 pandemic. We will next conduct a feasibility and implementation study to explore whether the intervention can be successfully delivered within primary care. If successful, the intervention offers practical strategies for delivering a task-shared and task-shifted approach to post-diagnostic support that could be adapted for similar health and social care contexts internationally.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10155958PMC
http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0283818PLOS

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