AI Article Synopsis

  • The global rise of COVID-19 resulted in a significant number of Long COVID cases, but there is a lack of evidence-based treatments, necessitating the evaluation of current therapeutic options.
  • A consensus workshop with patients and stakeholders was held to prioritize research, leading to the design of a feasibility study that includes input from patient partners on interventions and study processes.
  • The study focused on testing various pacing resources (like a video, app, and book) and demonstrated the effectiveness of co-production in shaping research relevant to patient needs.

Article Abstract

Background: The high incidence of COVID-19 globally has led to a large prevalence of Long COVID but there is a lack of evidence-based treatments. There is a need to evaluate existing treatments for symptoms associated with Long COVID. However, there is first a need to evaluate the feasibility of undertaking randomised controlled trials of interventions for the condition. We aimed to co-produce a feasibility study of non-pharmacological interventions to support people with Long COVID.

Methods: A consensus workshop on research prioritisation was conducted with patients and other stakeholders. This was followed by the co-production of the feasibility trial with a group of patient partners, which included the design of the study, the selection of interventions, and the production of dissemination strategies.

Results: The consensus workshop was attended by 23 stakeholders, including six patients. The consensus from the workshop was to develop a clinical trial platform that focused on testing different pacing interventions and resources. For the co-production of the feasibility trial, patient partners selected three pacing resources to evaluate (video, mobile application, and book) and co-designed feasibility study processes, study materials and undertook usability testing of the digital trial platform.

Conclusion: In conclusion, this paper reports the principles and process used to co-produce a feasibility study of pacing interventions for Long COVID. Co-production was effective and influenced important aspects of the study.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10061378PMC
http://dx.doi.org/10.1186/s40900-023-00429-2DOI Listing

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