AI Article Synopsis

  • The study examined autism research funding in Aotearoa New Zealand from 2007 to 2021, revealing that 67% of the funding went towards biology research.
  • The autistic and broader autism communities expressed dissatisfaction with the funding distribution, feeling it didn't align with their priorities and needs.
  • The findings emphasize the necessity for greater inclusion of autistic individuals in research and funding decisions to ensure that their concerns are addressed.

Article Abstract

We aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We compared the funding distribution in Aotearoa New Zealand to other countries. We asked people from the autistic community and broader autism community whether they were satisfied with this funding pattern, and whether it aligned with what is important to them and to autistic people. We found that the majority of funding for autism research was awarded to biology research (67%). Members of the autistic and autism communities were dissatisfied with the funding distribution, and expressed a lack of alignment with what is important to them. People from the community indicated that the funding distribution did not address the priorities of autistic people, and that it indicated a lack of engagement with autistic people. Autism research funding needs to reflect the priorities of the autistic and autism communities. Autistic people need to be included in autism research and related funding decisions.

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Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10576894PMC
http://dx.doi.org/10.1177/13623613231155954DOI Listing

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