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Risk factors affecting quality of life in children with epilepsy and their caregivers: A secondary analysis of a cross-sectional online survey in Japan.
Epilepsy Behav
January 2025
Department of Epileptology, National Center Hospital, National Center of Neurology and Psychiatry, Tokyo, Japan.
Objective: This study aimed to evaluate the quality of life (QOL) in children with epilepsy and their caregivers, as well as the caregiver burden, through a secondary analysis of a cross-sectional online survey in Japan.
Methods: Eligible participants were caregivers of children (aged < 18 years) diagnosed with epilepsy. Children's QOL was measured using the daily living subset of the Japanese version of the Quality of Life in Children with Epilepsy (QOLCE-Js52).
Basic Science and Pathogenesis.
Alzheimers Dement
December 2024
Brain and Mind Institute, Aga Khan University, Nairobi, Kenya.
Background: Alzheimer's disease (AD) is the most common type of dementia globally and is the fifth leading cause of death and disability. About half of all people suffering from the disease are living in sub-Saharan African Countries including Kenya. However, research on dementia has been almost exclusively focused on the Global North societies.
View Article and Find Full Text PDFClinical Manifestations.
Alzheimers Dement
December 2024
Universidad Santa Maria La Antigua, Panama, Panama.
Background: Dementia affects nearly 50 million people worldwide and is the leading cause of disability in older adults. According to predictions by the World Health Organization, the global population with dementia will reach 82 million by 2030, and 152 million by 2050. Currently, pharmacological interventions to delay cognitive decline are proving to be insufficient.
View Article and Find Full Text PDFPilot Testing and Validation of an Educational Game on Transportation Challenges for Mobility Device Users.
Disabilities (Basel)
December 2024
Human Engineering Research Laboratories, Department of Veterans Affairs Pittsburgh Healthcare System, University of Pittsburgh, Pittsburgh, PA 15206, USA.
Despite the increasing use of assistive mobility devices, practical education to navigate real-world ground transportation barriers is lacking. The educational board game, called HERL-Town, was developed to teach safe and effective navigation for mobility device users (MDUs) in the community. The study examined the initial validity, reliability, and overall quality of HERL-Town as an educational tool for overcoming transportation barriers in real-world environments.
View Article and Find Full Text PDFA Qualitative Analysis of Family Caregiver Experiences Accessing Treatment for Self-Injurious Behavior in Individuals with Intellectual and Developmental Disabilities.
J Ment Health Res Intellect Disabil
June 2023
Department of Educational Psychology, University of Minnesota.
Introduction: There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive treatment. The purpose of this study (=15) was to begin to understand the treatment gap from the perspective of family caregivers.
Methods: In semi-structured virtual interviews, family caregivers discussed their experiences of working with providers to treat their child's or sibling's self-injury.
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