This essay explores the pitfalls and ambiguities in relying on preference elicitation to value health states, and it distinguishes preference elicitation, as a fallible method of measuring well-being, from public consultation, as an element of public deliberation. After distinguishing preference elicitation as a method of ascertaining opinions from preference elicitation as a method of measuring well-being, it points out that preferences depend on beliefs and the considerations speaking in favor of deferring to people's values do not carry over to deferring to their beliefs. Instead of valuing health states by their bearing on well-being, as measured by preferences, this essay argues for valuing health states by their bearing on activity limitations and suffering, as determined by public deliberation.
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http://dx.doi.org/10.1016/j.socscimed.2023.115711 | DOI Listing |
Orphanet J Rare Dis
January 2025
Ionis Pharmaceuticals, Inc, 2855 Gazelle Court, Carlsbad, CA, 92010, USA.
Background: Hereditary angioedema (HAE) is a rare, autosomal dominant disorder causing swelling attacks in various parts of the body, resulting in impacts on health-related quality of life (HRQoL). The symptoms of HAE and its impacts on HRQoL have been well-documented in adults; however, relatively little is known about the experiences of adolescents with HAE. The objective of this study was to use qualitative interviews to investigate how adolescents experience HAE symptoms and how HAE impacts their HRQoL.
View Article and Find Full Text PDFJ Clin Transl Sci
November 2024
Department of Medicine, Division of Endocrinology, Diabetes and Nutrition, University of Maryland School of Medicine, Baltimore, MD, USA.
Introduction: Patient and stakeholder involvement enhances the conduct and applicability of comparative effectiveness research (CER). However, examples of engagement practices for CER leveraging real-world data (i.e.
View Article and Find Full Text PDFAm J Primatol
January 2025
Department of Psychology, College of Liberal Arts, Rochester Institute of Technology, Rochester, New York, USA.
An individual shows handedness when they consistently prefer one hand over the other for tasks that can be performed with either hand. Humans have a population-level right-hand preference, and past research shows that a variety of nonhuman primate species also show hand preferences. More complex manual tasks elicit stronger hand preferences than less complex manual tasks, but not much is known about hand preferences during a cognitive task in nonhuman primates.
View Article and Find Full Text PDFSports Biomech
January 2025
School of Exercise and Rehabilitation Sciences, The University of Toledo, Toledo, OH, USA.
Increasing cadence is an intervention to reduce injury risk for adolescent long-distance runners. It is unknown how adolescents respond biomechanically when running with a higher than preferred cadence. We examined the influence of increasing cadence on peak joint angles, moments and powers, and ground reaction forces in long-distance runners.
View Article and Find Full Text PDFInfancy
January 2025
Department of Psychology, University of Toronto Scarborough, Scarborough, Canada.
Musical interactions between caregivers and their infants typically rely on a limited repertoire of live vocal songs and recorded music. Research suggests that these well-known songs are especially effective at eliciting engaged behaviors from infants in controlled settings, but how infants respond to familiar music with their caregivers in their everyday environment remains unclear. The current study used an online questionnaire to quantify how often and why caregivers present certain songs and musical recordings to their infants.
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