Eliciting preferences and respecting values: Why ask?

Soc Sci Med

Center for Population-Level Bioethics, Rutgers University, USA. Electronic address:

Published: March 2023

This essay explores the pitfalls and ambiguities in relying on preference elicitation to value health states, and it distinguishes preference elicitation, as a fallible method of measuring well-being, from public consultation, as an element of public deliberation. After distinguishing preference elicitation as a method of ascertaining opinions from preference elicitation as a method of measuring well-being, it points out that preferences depend on beliefs and the considerations speaking in favor of deferring to people's values do not carry over to deferring to their beliefs. Instead of valuing health states by their bearing on well-being, as measured by preferences, this essay argues for valuing health states by their bearing on activity limitations and suffering, as determined by public deliberation.

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.socscimed.2023.115711DOI Listing

Publication Analysis

Top Keywords

preference elicitation
16
health states
12
method measuring
8
measuring well-being
8
public deliberation
8
elicitation method
8
valuing health
8
states bearing
8
eliciting preferences
4
preferences respecting
4

Similar Publications

Background: Hereditary angioedema (HAE) is a rare, autosomal dominant disorder causing swelling attacks in various parts of the body, resulting in impacts on health-related quality of life (HRQoL). The symptoms of HAE and its impacts on HRQoL have been well-documented in adults; however, relatively little is known about the experiences of adolescents with HAE. The objective of this study was to use qualitative interviews to investigate how adolescents experience HAE symptoms and how HAE impacts their HRQoL.

View Article and Find Full Text PDF

Introduction: Patient and stakeholder involvement enhances the conduct and applicability of comparative effectiveness research (CER). However, examples of engagement practices for CER leveraging real-world data (i.e.

View Article and Find Full Text PDF

An individual shows handedness when they consistently prefer one hand over the other for tasks that can be performed with either hand. Humans have a population-level right-hand preference, and past research shows that a variety of nonhuman primate species also show hand preferences. More complex manual tasks elicit stronger hand preferences than less complex manual tasks, but not much is known about hand preferences during a cognitive task in nonhuman primates.

View Article and Find Full Text PDF

Increasing cadence is an intervention to reduce injury risk for adolescent long-distance runners. It is unknown how adolescents respond biomechanically when running with a higher than preferred cadence. We examined the influence of increasing cadence on peak joint angles, moments and powers, and ground reaction forces in long-distance runners.

View Article and Find Full Text PDF

Musical interactions between caregivers and their infants typically rely on a limited repertoire of live vocal songs and recorded music. Research suggests that these well-known songs are especially effective at eliciting engaged behaviors from infants in controlled settings, but how infants respond to familiar music with their caregivers in their everyday environment remains unclear. The current study used an online questionnaire to quantify how often and why caregivers present certain songs and musical recordings to their infants.

View Article and Find Full Text PDF

Want AI Summaries of new PubMed Abstracts delivered to your In-box?

Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!