Background: The Patient-Determined Disease Steps (PDDS) scale is a patient-reported measure of disability used by at least 3 North American multiple sclerosis (MS) registries. We conducted a systematic review of the psychometric properties of the PDDS scale as part of a harmonization effort related to disability measures used in MS registries.
Methods: We searched the EMBASE, Ovid Medline, Scopus, Cochrane Database of Systematic Reviews, CENTRAL, CINAHL Plus, and ClinicalTrials.gov databases from database inception through July 28, 2020. Two reviewers independently screened abstracts and full-text reports for study inclusion and data extraction and assessed study quality and risk of bias. We included studies that assessed the validity or reliability of the PDDS scale. We conducted a meta-analysis to quantitatively summarize the findings.
Results: From the 2476 abstracts screened, 234 articles underwent full-text review, of which 5 met the inclusion criteria. These studies assessed criterion validity, construct validity, and test-retest reliability. In all studies, criterion validity was assessed by correlating the PDDS scale score with the Expanded Disability Status Scale score (pooled r = 0.73; 95% CI, 0.66-0.79). Test-retest reliability was high (pooled intraclass correlation coefficient = 0.96; 95% CI, 0.92-0.99).
Conclusions: In this systematic review, the PDDS scale demonstrated criterion and construct validity for assessing disability in individuals with MS who have mild to moderate disabilities. This review also supports the test-retest reliability of the PDDS scale, although further studies with larger samples are needed.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9881423 | PMC |
| http://dx.doi.org/10.7224/1537-2073.2021-102 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Psychometric measurement properties and reference values of the six-spot step test, the six-minute walk test, the 25-foot walk test, and the 12-item multiple sclerosis walking scale in people with multiple sclerosis.
Mult Scler Relat Disord
December 2024
Exercise Biology, Department of Public Health, Aarhus University, Denmark.
Unlabelled: This review investigated the psychometric properties of the most commonly used short-, long-, complex- and patient-reported walking outcome measures in multiple sclerosis(MS): the timed-25-foot walk test (T25FW), the six-minute walk test (6MWT), the six-spot step-test (SSST), and the 12-item MS walking scale (MSWS-12), along with reported reference data of these tests.
Methods: Based on PubMed and Embase searches, psychometric as well as descriptive data of T25FW, 6MWT, SSST, and MSWS-12 were extracted from studies evaluating persons with MS (pwMS). Descriptive data was also extracted from healthy controls (HC), if reported.
Perceived stigma among undergraduate medical students towards people with psychiatric illness: A cross sectional study.
J Family Med Prim Care
November 2024
Medical Officer, District Hospital, Ambedkar Nagar, Uttar Pradesh, India.
Background: Over 450 million individuals worldwide suffer from mental illnesses, according to epidemiological data, making this one of the biggest problems facing modern medicine. People often react in a fairly discriminatory way to those with mental illness, and stigmatizing views toward those with mental illness are ubiquitous. In India, people who suffer from mental illness live with their families, and the stigma associated with mental illness has a significant impact on how effectively these people are treated over time by their families and communities.
View Article and Find Full Text PDFDevelopment and validation of the Japanese version of the Public Attitudes Toward Epilepsy (PATE-J) Scale.
PCN Rep
December 2024
Department of Medicine, Division of Neurology, Faculty of Medicine University of Malaya Kuala Lumpur Malaysia.
Aim: This study aimed to develop and validate a Japanese version of the Public Attitudes Toward Epilepsy (PATE-J) Scale to measure attitudes towards epilepsy among the general Japanese population.
Methods: The study employed a cross-sectional design using an online survey of 537 participants from the general public in Japan, with follow-up surveys at 2 weeks and 3 months. The PATE Scale was translated following standard guidelines and validated by conducting confirmatory factor analysis (CFA) on the complete data set to assess the original two-factor structure of the PATE Scale.
Employment status of multiple sclerosis patients in Japan.
J Med Econ
December 2024
Medical Affairs Division, Novartis Pharma K.K., Tokyo, Japan.
Aims: We conducted a questionnaire survey on Japanese MS patients to determine the relationship of fatigue, depression, and physical activity limitations with employment status.
Materials And Methods: The study was conducted to assess the Patient Reported Outcome of MS patients treated with disease-modifying drug ≥6 months by recruiting MS patients from a web-based patient panel. Multiple regression analysis was performed by using items described in the Work Productivity and Activity Impairment Questionnaire-General Health Version 2.
Middle-range scores from the patient determined disease steps scale reflect varying levels of walking dysfunction in multiple sclerosis.
BMC Neurol
October 2024
Department of Biostatistics, University of Alabama at Birmingham, Birmingham, AL, USA.
Article Synopsis
- Multiple sclerosis (MS) significantly impacts mobility in young and middle-aged adults, and the Patient Determined Disease Steps (PDDS) scale is used to measure disability levels, particularly in terms of walking function.
- This study aimed to determine if the middle-range PDDS scores accurately represent different levels of walking dysfunction through a detailed analysis involving various tests and scales among 374 participants.
- Results indicated strong correlations between PDDS and various walking measurements (like EDSS and T25FW), suggesting that the PDDS can effectively reflect varied walking disabilities in MS patients, though its relationship with fatigue and quality of life is weaker.
Want AI Summaries of new PubMed Abstracts delivered to your In-box?
Enter search terms and have AI summaries delivered each week - change queries or unsubscribe any time!