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http://dx.doi.org/10.1073/pnas.2219555120DOI Listing

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What Patients Say: Large-Scale Analyses of Replies to the Parkinson's Disease Patient Report of Problems (PD-PROP).

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August 2023

Grey Matter Technologies, a Wholly Owned Subsidiary of Modality.ai, San Francisco, CA, USA.

Background: Free-text, verbatim replies in the words of people with Parkinson's disease (PD) have the potential to provide unvarnished information about their feelings and experiences. Challenges of processing such data on a large scale are a barrier to analyzing verbatim data collection in large cohorts.

Objective: To develop a method for curating responses from the Parkinson's Disease Patient Report of Problems (PD-PROP), open-ended questions that asks people with PD to report their most bothersome problems and associated functional consequences.

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